Cholesteroland PBC.: Never had high... - PBC Foundation

PBC Foundation

9,387 members7,990 posts

Cholesteroland PBC.

My-life profile image
15 Replies

Never had high cholesterol. Had PBC for at least 8 yrs. Now cholesterol high. What does everyone take? How did it effect you

Written by
My-life profile image
My-life
To view profiles and participate in discussions please or .
15 Replies
Ktltel profile image
Ktltel

Hi,

Look in to fenofibrates. I believe in the UK it's bezafibrates or visa/versa...I'm in the U.S. Some with PBC have had really good results with fibrates slowing down fibrosis from PBC as well as lowering cholesterol.

Stella❤

My-life profile image
My-life in reply to Ktltel

Stella thank you.yes in the states. They are sending results to gas Dr then they will call. Thank you. I don't like all the medicine.lol

Ktltel profile image
Ktltel in reply to My-life

Hi,

I don't either, but my hep says they are seeing promising results using fibrates in PBC patients. He won't put me on them however because he says I'm considered "a responder" to URSO. My fibrosis has gone up but he still hasn't put me on anything but URSO. Right now my only elevated issue is my Alk-phos. It has fluctuated between 150 and 192 for 10 years.

Stella❤

My-life profile image
My-life in reply to Ktltel

Yes. More meds. Lol. I'm thinking of opening a pharmacy. Lol.

gardenfun profile image
gardenfun in reply to Ktltel

Yes, Stella, Bezafibrat works very well with my PBC, too.Best Christmaswishes from Germany.

Eva

gwillistexas profile image
gwillistexas

I had high cholesterol several years before PBC diagnosis. I still take a statin.

My-life profile image
My-life in reply to gwillistexas

Any side effects? Hi gwillistexas.

gwillistexas profile image
gwillistexas in reply to My-life

Hello. No side effects 😊

My-life profile image
My-life in reply to gwillistexas

Thank you

gwillistexas profile image
gwillistexas in reply to My-life

You’re welcome.

janetfolley profile image
janetfolley

Have taken statins now for 6yrs without any problems..my cholesterol was very high 11.8 due to having PBC but now around 5.2 my GP says that's ok

My-life profile image
My-life in reply to janetfolley

Thank you so much. It is nice to have input and information before we talk to our Drs.

My-life profile image
My-life in reply to janetfolley

Thank you souch.

IOW-gal profile image
IOW-gal

Hi I’m in the UK and my consultant in consultation with another colleague decided to put me on Bezafibrate alongside URSO. It has certainly improved my LFT results and slightly lowered my cholesterol.

My-life profile image
My-life in reply to IOW-gal

Thank you. Hate meds lol

You may also like...

PBC

results but just wondering what others readings are and how they feel. Thank you 😊 Sheree xx

Pbc

Well started a trial drug that I'm unsure what it was but had to stop all my medication as the itch...

Pbc

upper respiratory infection? Does anyone you know have it? Did you recover? Did they recover?...

Pbc

Just had the best comment by far A work colleague ask what I was doing tonight. I replyed nothing...

Pbc

was referred by gp who said i have pbc as a result of blood tests Had fibroscan and ultrasound...