BLOOD TESTS: Hi hope all keeping well are... - PBC Foundation

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BLOOD TESTS

cavi profile image
cavi
10 Replies

Hi hope all keeping well are any of you having your bloods done before appointment dates with Consultant had a call from Q E today no bloods being done in liver clinic got to attend one of the blood units set up , are liver clinic appointments being cancelled got mine Dec 7 th at Q E my last appointment was a chat with Consultant over the phone no scan appointment either the last 3 cancelled many thanks x

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cavi profile image
cavi
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10 Replies
Oidra profile image
Oidra

My next appointment atQE is a telephone consultation again in March 2021 . Last time I had my liver function tests done at the doctors before the consultation ( by mr request) so I had something to talk about. I will do the same in March.

cavi profile image
cavi in reply toOidra

hi thanks for reply were do you have your scan and how often

Oidra profile image
Oidra in reply tocavi

I cant remember the last time I had a scan! It wasn`t suggested when I spoke to the consultant. I think I am doing pretty well and have no concerns about PBC. I hit 80 this year, diagnosed 20 years ago, so appreciate being one of the "lucky" ones. I had been a 24/7 carer for my husband after a devastating stroke for the last 2 years, he had a second in August which he didn`t survive. I had had little time to think of myself as his needs came first so considering what I have been through I was pleased my results were little changed.

Everyone has a different story but we all travel in hope!

cavi profile image
cavi in reply toOidra

I admire you for all your care you gave your dear husband and glad you keep your PBC under control take care x

kimphoebe profile image
kimphoebe

Hi Cavi

Only had telephone appointments with QE, had my bloods done locally as I live in South Wales. Did have a us scan there bout 4 weeks ago. Already had call from consultant to discuss things.

creedy1 profile image
creedy1

I had bloods done before my appointment in September, mine was telephone consult too. Luckily I work in same hospital so a colleague did my bloods day before my consult. I have a face to face appt now been arranged in January.

Buddy2017 profile image
Buddy2017

I had a telephone appointment at another London hospital beginning of October , Consultant arranged a blood test (by appointment only ) for the following week and an Ultra sound ,she then sent a letter with the results to me. Just waiting for my Fibro Scan appointment now. For me it was such an easy experience, no waiting and less travelling time, I actually preferred it.

I always have bloods done at my GP surgery in the week before I’m due to see/speak to consultant.

58goose profile image
58goose

I was due for my annual appointment at the hospital in Feb but no sign of it happening any time soon! My consultant always gives me a blood test form at my annual appointment to use about a week before my next trip to see him, so it's gathering dust on the shelf while I wait!

auntym profile image
auntym in reply to58goose

Same here. I am overdue for my yearly check-up which should have been in September.

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