5 months ago i started having pale stools after i did a 9mile fell race. I have always been relatively healthy, have touched alcohol, haven’t smoked etc. They were generally on/off and not constant.
At first they thought it was possible I had Pancreatic Cancer so I paid privately for a CT scan and an abnormality came back on the pancreas but it wasn't cancer. They also picked up a kidney cyst but said my liver was fine.
I have since had an mri & mrcp which again has shown the abnormality (very small fatty focal sparring) but also flagged up a gallstone. All the biliary ducts are fine apparently, no dilations, so blockages but a gallbladder with a gallstone and sludge in it.
I recently had a blood test and all LFT’s came back fine apart from my bilirubin which is seems to fluctuate between 24-31.
My HPB consultant has asked for diabetes test and Gilberts Syndrome test.
In my last meeting I asked him again if my liver looked okay on the scans and he said yes. Surely a CT, MRI & MRCP scan would show fatty liver, cirrhosis, enlarged liver or at least show indications of and i presume they would have flagged that in the results.
So apart from waiting for the Gilberts Syndrome test and the Gallstones ( he wants to take it out if things aren't better in 6 weeks) the only other conclusion I can come to is PBC.
So how do i get that looked at? Is it an AMA blood test and maybe a liver biopsy?
5 months ago i was healthy, running, had a reasonable amount of energy (felt fatigued but i have been going through a break up and also my mum had cancer so it was pretty stressful) and overall felt pretty great but this has thrown me completely.
Any advice or ideas would help, thanks.