I’m a 36 yr old Mum of 2. I haven’t actually been diagnosed with PBC, but I’m expecting the results from AMA test this week. I’m struggling so much with anxiety and so so scared for the future.
A bit of background, I have been suffering from fatigue for a number of years. Last Oct (2017) my GP did blood tests which showed raised ferritin (191) and raised ALP (154). He repeated after 3 months, ferritin had gone down to 164 and ALP remained about the same at 157. He wasn’t concerned as ferritin had lowered and so that was that. Fast forward to this Oct I went back again about the fatigue and ALP/ferritin still raised (iron and saturation low so not heamochromitosis). I had an ultra sound which did show mild fatty liver but in past month I have started to feel some liver aches and mild itchy skin.
I also have normal total bilirubin but elevated conjugated bilirubin (7). Ive read bilirubin doesn’t usually become elevated until later in the Disease.
I’m certain I have PBC and I’m so scared and upset. I’m struggling to put on a brave face for my children and have barely slept for past 3 weeks. Lucky to get 2 hours each night.
Please help x