I recently got a diagnosis of PBC. I am due to have a MRI 6 months hence. It's a shock Currently I have few symptoms and on the whole eat veggie, also am very active at nearly 58.. I am dreading that down the line my world will crumble. I have climbed back over last few years from deep depression and bright my weight down by 3.5 stone. I now have a very busy part time job i enjoy after a long time struggling to get back to work. It feels unfair and the thing is I am not unique in any way. I should think we all will also be dealing with a grieving for the life we expected to have. I am so glad I found this site. I live in Ireland. 2 other people on my docs list. They are still well and diagnosed 10 years ago. i grew up in a heavily industrialised area in the UK. Has to be some connection. Plus stress. Autoimmune? How do I stop fighting myself on such a deep level? Anyone else find emotional/mental approach has any effect? I have no patience for mindfulness am also possibly ADHD. The non stop physical activity might on the other hand be helpful .Not sure about the mental side. When I got diagnosed I found myself speeding up as I panic attacked. No one knew my being in a great mood was my ott reaction to suppressing a feeling I wanted to scream and rage at the hand I'd just been dealt. Then I thought wait a minute -I am the same as before: healthy. I have had this for several years at least and symptoms I do have tell me it was there in my mid -late thirties. So I calmed down and thought- right I have work to do here. Take the meds and a good look at holes in my already reasonable diet. Just wondering would following a Coeliac diet be a way to begin?
Last word (and I can write on ta7p so sorry it's long) I really hope everyone finds a way to enjoy the holiday season ! I am so thankful this website exists. 😊