Diagnosed last year with PBC. ALP was 755 and after a year on Urso only down to 540; been checked 3 times since diagnosis. Dr. is talking about adding Ocaliva. His words were "I don't want to bankrupt you but..."
I have health insurance (medicare and supplemental insurance) but am still concerned that insurance won't come close to covering the $84,000 yearly cost. Wondering if anyone in the US knows of a medication assistance program which will help cover the costs. Also wondering what others in the US are paying for this medication. Pharmacy couldn't give me any idea of cost with my insurance...but the look on the pharmacy clerks face was priceless when she looked up the cost Ocaliva.