Hello. I thought I’d post results of my appointment with specialist. Blood tests. ALP- 245, bilirubin - 16. AST & ALt both marginally elevated. Fibroscan is 9.5 so no change there.
I continue to have substantial pain in my right upper abdomen which comes and goes. My specialist is ordering a colonoscopy, gastroscope and a test for bile mobility.
Exhaustion is my norm but I have very little itching. So I guess I’m holding the course. I’m not on URSO because I had very bad reaction and not eligible for Ocaliva, so waiting for other clinical trials that I may be a candidate.
Thanks for all your posts. Helpful to know one is not alone and that a lot of symptoms are common to us all
You all have an awesome day.
J
Written by
Jeanb47
To view profiles and participate in discussions please or .
I hope the tests give some direction. Interesting to hear that there is a bile mobility test.. is the Ocaliva not approved yet in your country? Keep us posted. Stella's right-- we care!
I hope your further tests can give you some answers. I think there has been some talk of using fenofibrate for some, this is a cholesterol lowering drug. Perhaps someone on here is on it and can make a more educated comment. Might be worth an ask.
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.