Urso for life?: Hi i've just had a diagnosis... - PBC Foundation

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Urso for life?

5422 profile image
5422
11 Replies

Hi i've just had a diagnosis of pcb today after high protein levels, im going to take urso to bring them back down, once you start taking urso is it for life?

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5422
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11 Replies
Ballymahon2 profile image
Ballymahon2

Yes unfortunately but if it gets levels down thats great the only side effect for me was constipation but i have learned to control that with high fibre diet 😐

Ellyne profile image
Ellyne in reply toBallymahon2

I seem to be having the same problem. I was wondering if it was the Urso. Ellyne

Ballymahon2 profile image
Ballymahon2

Love the photo

5422 profile image
5422 in reply toBallymahon2

Lol didnt feel that bloody happy when i got the diagnosis, but there's people worse off!😂

Ballymahon2 profile image
Ballymahon2 in reply to5422

I know the feeling

Evaibrahim60 profile image
Evaibrahim60

Yes it might be the case till something happened or new medications became available!

5422 profile image
5422 in reply toEvaibrahim60

Thankyou for replying, i forgot to ask the consultant. 👍🏻

donna01 profile image
donna01

Let's all pray they find a cure soon!

KevinHall10_ profile image
KevinHall10_

I think u resemble me lol

EileenUSA profile image
EileenUSA

pbcfoundation.org.uk

Hi,

We've all been there with diagnosis shock and adjustments.You will find your balance as you go. This site is fantastic source of peer support and info.

If you haven't done so already- you should join the PBC foundation ( they are the sponsors of this support forum).

Go to the PBC foundation- link above. ( it's a separate membership from this peer support group)

You create a User Name and PW ( it's free).

Once you join the Foundation- log in and you will have online access to the quality, vetted medical info on PBC. Under the existing members menu you will find a document called "compendium" Once you open this document scroll down to FAQ's and you'll find info about on AMA and other abbreviations from blood work results.

Hope this helps.

5422 profile image
5422 in reply toEileenUSA

Thankyou for your advice , Jules x

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