Impending lab results: I went into my primary... - PBC Foundation

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Impending lab results

Gatorlin profile image
30 Replies

I went into my primary physician and had the Comprehensive ANA drawn. Also got a look at the AMA results. It was high, but had to see for myself, I guess. Now, to wait on the results. Hoping it’s not Lupus. Anything else I can deal with, or try to deal with it.

Y’all are a good support system.

gatorlin

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Gatorlin profile image
Gatorlin
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30 Replies
gwillistexas profile image
gwillistexas

Let us know. We will keep moving forward with heads held high😊

Gatorlin profile image
Gatorlin in reply togwillistexas

Thanks, I will let y’all know when I know something.

EileenUSA profile image
EileenUSA

Stay positive in the waiting period (easier said than done sometimes) Hope the results get to you before the weekend. Do you have online access to test results?

Gatorlin profile image
Gatorlin in reply toEileenUSA

I never heard from the nurse, so that means I have to make that ride. The nurse did say that the doc is thinking I have sjorgens disease, but I hope not. With my titer being 1:1280, I’m beginning to think I have I something serious.

Keep supporting me because I’m still worried.

gwillistexas profile image
gwillistexas in reply toGatorlin

Gatorlin...my titer is higher than yours. I haven’t gone to a rheumatologist as of yet. My Internist says possibility of schleroderma. I have all the medical I can afford right now, so I’m waiting it out. Have no symptoms of anything yet. Try not worry too much until you know more. (I don’t practice what I preach, lol!) 🤗

Gatorlin profile image
Gatorlin in reply togwillistexas

I must be misunderstanding all the sites I go on. It indicates that mine is very high. Anyway, I’ll find out when I see him next week. Any positive ANA is serious. You need to bite the bulletin and see a specialist. Keep in touch, and I’ll update when I can.

gwillistexas profile image
gwillistexas in reply toGatorlin

I will. Please do💙

Gatorlin profile image
Gatorlin in reply togwillistexas

Go to healing well.com. Then click on the explanation of numbers. You will see that the more the numbers go up, the most positive you are.

gwillistexas profile image
gwillistexas in reply toGatorlin

Oh I know, mine is positive. Tks😊

Gatorlin profile image
Gatorlin in reply toGatorlin

Also, you can go to Rheuminfo.com. Scroll down to the bottom. It explains pretty easily.

gwillistexas profile image
gwillistexas in reply toGatorlin

Gatorlin...thanks for that info. I read it & saved to my email archive. Scary.

Gatorlin profile image
Gatorlin in reply togwillistexas

You are very welcome!

gwillistexas profile image
gwillistexas in reply toGatorlin

I was going by the range in my lab results. It says <1:40 is normal range. Mine was done at Clinical Pathology Lab in Austin.

Gatorlin profile image
Gatorlin

I am being as hopeful as I can. I do not have access to the labs through this doctor, but I will be calling them in a few days if I don’t hear anything. Thanks for the encouragement!

EileenUSA profile image
EileenUSA

Hang in there. You've done all you can for now.. hope there's some good distractions for you!

Gatorlin profile image
Gatorlin in reply toEileenUSA

I will Eileen. Afraid there are not a lot of distractions, but I try to stay busy. Thanks for caring!

Yes, this is the most caring and supportive group of people I've ever seen. Even though it seems we're seeing more and more dx with pbc, it is still a rather rare disease. I think it's really great you seem to be able to ask any kind of question on here and there is always someone to come back with some comforting words and/or advice. Happy New Year to all and wishing everyone good health in the coming year.

Gatorlin profile image
Gatorlin

Ok, went by my primary doc’s office to see the numbers on the lab he drew.

ANA, 1:1280

Also said it was homogeneous. What do yall think of these numbers?

gwillistexas profile image
gwillistexas in reply toGatorlin

According to the range my lab has, should be <1:40. Yours looks negative.

Gatorlin profile image
Gatorlin

No, it’s high, and positive. For homogenous, likely Lupus. I am still waiting on more labs. I think I’ll call them tomorrow to see if they received them yet. I guess your lab reports are different?

gwillistexas profile image
gwillistexas in reply toGatorlin

My ANA TITER was 1:640. This particular test was sent to Austin & their range shows <1:40.

gwillistexas profile image
gwillistexas in reply toGatorlin

Pattern was “Speckle”.

Gatorlin profile image
Gatorlin in reply toGatorlin

In reference to your lab, anything above 140 is suspicious. Since your lab showed >160, it means you tested positive. The numbers keep doubling the higher you present positive.

Gatorlin profile image
Gatorlin

Ok, well as I understand it, the higher the number on the right side, the more your chances of being positive. And since I was homogenous it is

indicative of Lupus. However, it could still not be Lupus. Women my age sometimes appear to be positive, and may not be. I do have a lot of the symptoms, which concerns me. I’m so glad I have y’all as a support system!

Gatorlin profile image
Gatorlin

Well, I am so aggravated. My labs have disappeared that they just drew. Now the rheumatologist wants me to come to his office, 35 miles away, to have them drawn again. The nurse says that the other nurse was wrong in sending me the order. He always wants to draw the labs in his office. So, another week will go by before I can get my lab report. Anybody have these staff problems?

gwillistexas profile image
gwillistexas in reply toGatorlin

Wow! That’s discouraging. Hasn’t happened to me & I don’t think it would happen a second time. I guess you have no choice but to ride their wave🦋

Gatorlin profile image
Gatorlin

I don’t think it will happen again, and I am going to make sure the nurses know what they are talking about this time around! Nobody’s perfect, but telling the wrong info to a patient is not a good thing. Hope i

gwillistexas profile image
gwillistexas in reply toGatorlin

True, but some mistakes can be costly to the patient, emotionally ❣️

Gatorlin profile image
Gatorlin in reply togwillistexas

absolutely

Gatorlin profile image
Gatorlin

Oops as, I was saying, I hope it doesn’t happen to anyone else.

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