New to pbc

[Pamela4475]

I was just diagnosed with pbc and have started taking urso 300mg three times a day....he wants me to take Lipitor but I am a little scared became of the effect on the liver enzymes.... does anyone else take Lipitor?

[Sam1121]

I take Lipitor and Urso

[Pamela4475 in reply to Sam1121]

Thank you Sam.... it did not elevate your enzymes?

[Sam1121 in reply to Pamela4475]

Hey- no not at all!!

[HelenAust]

I also take both. I responded to urso for the first 6 months, then my lfts started going back up, so my consultant put me on the 2. It improved my results greatly. I understand that it was a unexpected discovery that the lipidl improves the effectiveness of urso on some people, so I think it's worth the shot. Good luck.

[Pamela4475 in reply to HelenAust]

Thank you Helen

[dolphinlover2020]

Hello,

I took it and it ended up damaging my liver more. My doctor told me to stop taking it.

[Pamela4475 in reply to dolphinlover2020]

Thanks for the info....what was your dosage?

[dolphinlover2020 in reply to Pamela4475]

40 mgs

[Pamela4475 in reply to dolphinlover2020]

Thanks.... hope things are better.... all I seem to be finding is gloom and doom on the liver site for the US

[4pjx__ in reply to Pamela4475]

I know what you mean! The American Liver Foundation one is almost no help at all. It seems like there are not very many people on it with PBC. Kind of depressing.

-Pam

[Pamela4475 in reply to 4pjx__]

True..... and depressing... glad to be here amongst you guys

[dolphinlover2020 in reply to Pamela4475]

I started taking it and then after 2 months I felt pain in my right side under my ribs. My doctor tested my liver enzymes and they went up dramatically high. Now I have to have my liver tested every week for 2 months to make sure the numbers are going down. The doctor said the medication affects people differently.

[Pamela4475 in reply to dolphinlover2020]

I just took my first dose... I always have pain in that area so if it worsens I will quit and call him.... let you know how it works for me.... scared 😳

[dolphinlover2020 in reply to Pamela4475]

Ok, take care!