Nothing's helping : I tried taking my Urso... - PBC Foundation

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Nothing's helping

8 Replies

I tried taking my Urso and prednisone this morning with breakfast

Than the azathioprine with lunch. I have a call in with my dr. The nauseous and puking doesn't stop even with the anti nauseous pill that disolves under my tongue. I'm sick this isn't working for me

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8 Replies
Ktltel profile image
Ktltel

Hi Jenny,

Get in to see your doctor if you can. Or, make a phone call to Mayo. They can order labs for you to have local if you need too. See what's going on. Keep me posted. Also, you can take the zofran every 4 hours if you need too.

Remember, URSO on an empty stomach will make you sick. So if your not eating and taking Urso, it could be complicating things. ❤

in reply toKtltel

I'm eating with all my meds. It's the AZA that causing it.

Ktltel profile image
Ktltel in reply to

OK. Oh boy. I'm so sorry girl. Still, get some input from Mayo if you can. See what they have to say....

Jo_Br profile image
Jo_Br

Hugs Jenny, I hope this gets sorted today. It's too much for a person to bear on top of other symptoms. Did you try anti sickness bands? x

witchiegirl profile image
witchiegirl

I hope your doc will suggest an alternative to azathioprine as it just doesn't suit some people. There are several other options out there. I wish you well. I will never forgot my time on azathioprine.

JaneIng profile image
JaneIng

I am sorry you have to go through this, Jenny. I have a lot of issues with meds also. Anti-nauseous medicine doesn't work for me either. I really feel for you.

Hope you find an alternative medicine that works for you. For a minor nauseous, I rub 2 drops essential oil Digestzen (by doTerra) then15 minutes later I would burp and feel better. It works for my Mom too.

Hope you you feel better soon.

I'm not going to survive these diseases. I don't have the family support nor do I have a caring husband.

He's putting me through the worse hell imaginable

And I just started my azathioprine

I have to take care of myself

The fatigue seems to be not as bad

But I get severe upper abdominal pain. I almost called 911 but I knew that the emergency room would only give me pain meds and send me on my way.

Then I would of had to get myself home from the hospital

I'm not going to survive this like some of you can and.

Biddyb profile image
Biddyb

Hi Jenny if Azathiaprine isn't agreeing with you ask for Mercaptopurine if it is available in the states if you are set on immunosuppressants. It is so sad that you have no backing from your other half, I hope you have friends or other family to help you. I am still awaiting confirmation that I have AIH overlap but have decided not to take immunosuppressants as Azathiaprine made me so ill and am not willing to put my body through this treatment.

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