thank you for allowing me to join.

[juliepervin]

i was diagnosed 4 yrs ago. stage 1-2. I'm on URSO And don't have many complaints.

Obe thing I WOULD like to know is if any you have really dark

URINE??

[KatherineM_PBC]

Hi Juliepervin. Recently I had pain under my right rib, when I was at my annual Gastro Consultant appt I mentioned it and he said "do you have dark urine / pale stools"? He thought it could possibly be gall bladder/gall stones but an ultrasound proved negative. It might be worth asking your GP if they will test a sample for you? It's probably just a sign you need to drink more fluids?

[juliepervin in reply to KatherineM_PBC]

thanl yoi

[26smith in reply to KatherineM_PBC]

When I was diagnose with PBC I had dark urine and pale stools

[Brummi]

Hi, There could be a few reasons why you have dark urine. One of my reasons is I am diabetic, the consultant told me to drink plenty of water. It could also be one of your medicines. Just an idea.

[Wilmahair]

Yes i do too esp when i can't get in enough fluids. I also put it down to my medications and mine is always worse in the mornings. The other thing that happens from time to time is i get a uti and this also makes my urine dark as it contains blood. If you suspect things not to be normal its a simple procedure to give your nurse or Doctor a sample for testing. I understand from my blood tests that i have for my pbc that some of the things measured are about kidney function. Some of mine are frequently up and there is a foot note to say there may be early kidney damage. So if in doubt go get the urine and bloods tested. Not worth waiting till damage is done.

[butterflyEi]

Hi juliepervin

I can see you have already had some great answers but I thought I would just say welcome to the group.

[Michiganpbc]

Yes I have dark urine PBC stage 2 I have been checked for kidney disease and it's negative so I think it may be a side effect of the PBC and or the URSO.

[Coco21]

Hello. You MUST drink more water!

I'm trying to drink at least 1 - 2 litres a day. Helps clean your system. On the days I don't drink enough water, my urine is dark.

So, make sure you drink lots of water. I know it's boring, but add fresh lemon juice too, that's nice. Good luck.

[AdeleMalcolm]

Well to back up some others definitely drink more. Mornings are often darker but with more water things start to lighten up. I had some tests recently at my docs and he always tests the renal system as well as liver. Never does any harm to refer to your GP though - hoping you have a decent one as some will tell you they are not all the same! Welcome to the group.

[ginam]

Collect your urine in a cup with a lid. If the color is amber and the urine appears to be forming bubbles like it is soapy, then it contains bilirubin.

[Juamcc]

Yes,bilirubin. That's serious. Google it.