Hi friends...so I have good news, but troubling symptoms. First the good news.
12/18/2015 (Pre-diagnosis) Alt 116, AST 89, Alk Phos 388; GGt 165, AMA 158 (!)
On January 4, 2016 my decaying gallbladder was removed, and liver biopsied, confirming pbc (stage 2, with some stage 3 inflammation. still confused by this) I had LOTS of post-op complications, because of my immune deficiency.
Had hepatic function lab draw last week (He wouldn't test AMA or GGT, as they wouldn't be dropping yet after surgery. ) I began the urso on January 14. Results were encouraging for a first look:
Alt 72, Ast 49, Alk Phos 156.
But I am still having pain in the liver area...I know I've asked about this before, but it's still troubling. My pain never goes away, and sometimes gets really, really bad. It hurts to the touch. I had a CT scan on Friday but no results yet. (The results are in, but the dr hasn't given them to me yet. He is TERRIBLE with getting reports back to patients. I am putting up with him because the NIH is taking over my care on April 11th, which is amazing.
Here's my quandary..because of the immune deficiency, if I have an infection, I won't run a fever...only the imaging will show that. For those of you who have had liver pain...has it been a constant, sometimes SEVERE pain? Any ideas as to what that could be?