Hello you guys,, how are you all doing? Well nothing changed here.. I'm still ill and my hip has got worse, even though I had steroids in it,, I also got my blood screen from lupus, normal range is 0/12 and I scored 12! A year ago it was 2! Technically I'm in normal range limit! So no treatment. Even though it is borderline,, I'm furious, they kept telling me pbc is a autoimmune disease! But I'm on no treatment for that either 😔 still get tremors from time to time, I look so ill, I have a raw red rash around my mouth??
Its v sore, the hospital have not giving me a single leaflet about pbc or advice on what it is I have or what will be my future,
Have a nice day xxx