Hi there I have been diagnosed 17 yrs and have extensive cirrhosis. I took ill health retirement 5 years ago and manage my fatigue fairly well. However there is sometimes unexpected events I can't plan for. My elderly parents are actually fitter than me, both either side of 80...... My mum has been taken into hospital and I spent 4 hours with her following her admission . I was already exhausted from a trip down south to see my mother in law ,so today I can barely function. Whilst my dad can drive to visit her I feel an obligation to help as my brother is on holiday and unaware of all this.
On top of everything else I'm having oral surgery in 48 hours.......I know I need to be ok for that but just struggling to prioritising everything and wonder how you all cope as there must be a few of you in similar situations
Sorry to complain but it's so hard! 😪