I unfortunately had another stroke last Tuesday night, I got all tired and uncomfortable watching TV upstairs so went to bed. My husband decided for some strange reason to make a banana cake so down I went alone it was only 9pm. I got in to bed started shivering and felt hot and flushed, I lay there in a lot of pain for about 30 minutes. My husband came downstairs and was taking to me, next thing I was incoherently mumbling away, as I'd just had a TIA or Mini Stroke 6 months ago he knew what was going on. The ambulance came I don't remember a thing until about 30 minutes later they were putting me in the ambulance. I was talking on the way to emergency, then it happened again in the ambulance.
This time they aren't convinced of a TIA as I have hepatic encephalopathy from end stage PBC. I have been on Rifixamin and Lactulose for over a month now and they aren't working.i am coughing up phlegm now and my body hurts head to toe. I had to ask my husband to let go of holding my hand yesterday as it was agony.
I am just managing to exist at the moment and I am just fed up.
I see the professor today 12th May to see what our plan is, my family are too afraid to leave me alone but I can't have them watch me all day.
It is frightening but I think my transplant (if they get me a donor) is imminent.
Fingers crossed for some good news tomorrow.