i was diagnosed in April 2001,I was told PBC was like a cold my immune system was attacking my liver just like it attacks the common cold.
I was lucky and found the PBC foundation shortly after having my liver biopsy.
Now in 2012 I am waiting for my tribunal case for long term sickness benefit,my memory is rubbish I.can be talking and all of a sudden have forgotten what I was talking about,I go out in my car and forget where I am going,my husband,children and grandchildren all just accept the strange things I do as it's "mum"
I now struggle to walk with osteoporosis ,osteoarthritis and bursitis I take 13 different medication every day for those three and a hiatus hernia,and PBC I have invested in a pre-payment certificate.
I have now been awarded a blue badge so this will make it easier to use my scooter.
I took redundancy from my job in October 2010 as I had really struggled for the last 3years at work I got up went to work,came home fell asleep as soon as I sat down woke about 9 pm had a snack went back to sleep got up went to work ,I hear you think we all do that ,but I didn't do anything else ,weekends were shopping,and seeing my family,if I stayed awake long enough.
Over the last 18 months the itching as got worse I have a spray bottle and ray my feet to try to ease it,I have chillo to and they are great for keeping my feet cold the tiles in the conservatory are also good at times to stop the burning ,the sensation of having liquid poured inside my leg is a n odd feeling,I also suffer with the sensation of all my insides shaking ,it's strange but some off these things you just accept as things that happen to you and don't always tell doctors about them for fear of being labeled strange.
I now do washing and ironing (instead of going out and buying more clothes)in my own time,my poor hubby needs another wardrobe now for all of his clothes that are neatly pressed.
I am about to fill out the forms for dla wish me luck