Restless legs that spreads all over the body

[Sunshine1932]

HiI self inject twice a week or more if I have a busy week

Ferritin is on the low side so I am now taking iron tablets

I am topping up my vit D

As far as I know my folate is good

However I have hideous restless legs that weirdly affects my body also and more so the right side. It feels a little like sciatica in my right leg and then pain from my feet all the way up to my head.

The pain can feel like a mix of joint/muscle and restless legs pain. All sounds a bit bizarre i know.

My Dr feels I have fibromyalga but I didn't want to take the diagnosis just yet and would rather improve my pain if I can. I have the usual fatigue and brain for too.

Can anyone relate? I'm thinking of going every other day with my injections.

Perhaps it takes a while for the Ferritin to raise also?

Any help, advice and opinions welcome.

🌟

[Wwwdot]

Hi Sunshine

So sorry to hear you’re suffering like this, interestingly my right hand side of my body tends to show symptoms more than the left.

I don’t know how long you are into self treatment but I would want to exclude it being a B12 issue too before accepting an alternative explanation.

When I get restless legs I use a magnesium rub on the soles of me feet and my calves and I take a magnesium supplement - that helps my restless leg and painful soles of feet to ease. The challenge as you know is that resolving a deficiency issue takes time. So perhaps focus on B12 and supplements over Christmas and review in the New Year?

Hopefully others can share their experiences too.

🤶🤶🤶

[Sunshine1932 in reply to Wwwdot]

Thank you.

I do take magnesium and an electrolyte powder and have a salt bath each day but maybe I could tweak what I take.

I shall see how I get on 🌻

[Wwwdot in reply to Sunshine1932]

Hi Sunshine

Sounds like a good plan! Fingers crossed you get some positive results.

🤶🤶🤶

[Hectorsmum2]

There is a restless legs forum onhelath unlocked with some real expertise on how to manage. Might be worth posting there.

[Sunshine1932 in reply to Hectorsmum2]

Thank you

[helvella in reply to Hectorsmum2]

Restless Legs Syndrome

About Restless Legs Syndrome

Welcome to the European Alliance for Restless Legs Syndrome (EARLS) and RLS-UK forum.

healthunlocked.com/rlsuk/about

[Sunshine1932 in reply to helvella]

Cheers

[Kazania in reply to Hectorsmum2]

Thank you I didn’t know that.

[PlatypusProfit8077]

is your ferritin low enough to ask for an iron infusion?

[Sunshine1932 in reply to PlatypusProfit8077]

No it's only in the 30s. My GP said it would be better if I was 50s so to take iron tablets for the next 6 months and then check again.

[B12phd]

Ferritin is a measure of the amount of iron in your cells. You will have lots of leg pain and restless legs with low ferritin. I take Prilosec which has the effect also of lower iron absorption. look for an iron supplement called fumerate. much easier on your body and absorbs well. it wasn't until I found that , that I was able to increase my ferritin to 50 or over. That's the level leg pains and spasms starts to consistently settle down. I use Nature's Nectar iron booster. and I haven't had as much problem. Part of the legs is iron but the other part is nerved damage from low B12.

[Sunshine1932 in reply to B12phd]

Thank you I really appreciate this information. The pain has been driving me wild today.

[Hockey_player]

I wonder if massage therapy, physio or chiropractic care would help? Massage therapy might help relax those muscles. Very best wishes!

[Sunshine1932 in reply to Hockey_player]

I shall look into that. I had a bit of a light bulb moment today. I have been taking regular codiene for pain but stopped it a week ago and that is when my restless legs intensified. I read it could be codiene withdrawal. I guess the next few weeks will tell

[Siany65]

Hi, I do not have b12 deficiency but I do have a folate and iron deficiency. My Restless legs were unbearable however since I started on the folic acidcand iron they have settled. I also take vit d. I'm waiting for spinal surgery and was on amitriptyline but came off it for a while but started it back a few weeks ago and I find that helps with the leg pain too. Hope this helps

[Sunshine1932 in reply to Siany65]

Thank you. I too take amitriptyline and kind my pain can increase a little about an hour after I have taken it which I always found weird. I also have prolapsed discs but not severe enough for surgery which I'm thankful for. I'm in iron now so maybe I will get some relief in a few weeks.

I hope your spinal surgery is a success 😊