PAS : Long covid symptoms.

[Nackapan]

Just read the email.

I actually said recently to a friend the symptoms sound oh so familiar .

The loss of taste being the tell tell evidence for covid and of courses those that get awful respiratory problems.

I didnt even realise loss of taste could be a b12 def. /PA symptom.

I thought for me its all the dental problems I've had since being deficient. Or lacking in some vitamins from time to time.

As fortunately transient.

I hope the chief medical officers take note. Any extra help to covid patients with b12 worth trying with no interference to any drugs needed.

Interesting .

[Gambit62 Administrator]

Nackapan - not clear what email you are referring to

[wedgewood in reply to Gambit62]

I’ve just received that email from the Pernicious Anaemia Society . , pointing out the similarities between P.A. and long Covid.

[Nackapan in reply to Gambit62]

Hope you've recieved it now

[Gambit62 Administrator in reply to Nackapan]

I had a look through stuff I'd received recently and couldn't see anything specific to COVID-19 and B12.I am a member of the PAS but there are other members of this forum who aren't.

Loss of taste is an early sign of a huge number of potential conditions, as are many of the symptoms of B12 which, combined with long time-scales for developing B12 deficiency, does make diagnosis extremely difficult ... along with the lack of conclusive tests.

[Hidden in reply to Gambit62]

Long COVID and Pernicious Anaemia

Symptoms of B12 Deficiency

Remember back in the day when you had the symptoms of B12 Deficiency due to Pernicious Anaemia. And some of you won’t have to remember because you still suffer from the symptoms to some degree or other even though you are (hopefully) being treated.

Let’s remind ourselves of those symptoms: ready?

extreme tiredness (fatigue)

shortness of breath

chest pain or tightness

problems with memory and concentration (“brain fog”)

difficulty sleeping (insomnia)

heart palpitations

dizziness

pins and needles

joint pain

depression and anxiety

tinnitus, earaches

feeling sick, diarrhoea, stomach aches, loss of appetite

a high temperature, cough, headaches, sore throat, changes to sense of smell or taste

rashes

Ah! It’s like welcoming back old friends isn’t it?

There’s something you might like to know however, that list of symptoms above is taken from the NHS’s webpage on the Long-Term Effects of COVID-19

This is part of the email from PAS received this morning x

[Nackapan in reply to Hidden]

Yes. I thought PAS information was available to all. I remember reading stuff before I was a member.

Sorry to cause any confusion

I just thought it interesting

[Hidden in reply to Gambit62]

Remarkable isn’t it? The symptoms experienced by patients with Long COVID are almost identical to those of Vitamin B12 Deficiency.We have, today, written to all Chief Medical Officers in the UK suggesting that they might want to consider evaluating the B12 status of patients with Long COVID. And we have also pointed out that using the current assay to evaluate the B12 status of patients wouldn’t do much good at all and that they might want to try a more accurate set of tests.

Some good may come of it, and even if patients are given a therapeutic trial of B12 injections it would be interested to see if they improved. We’ll keep you informed!

This is the remainder of the text gambit,sorry I’m a bit rubbish on the iPad

[Gambit62 Administrator in reply to Hidden]

Thanks Thrones. - No need to apologise for having to do it in two sections.

[Nackapan]

You shouldve got it on that basis !Thrones has put the whole content on her post.

There was nothing else.

Odd though . I wasnt receiving some before so let PAS know.

[Marz]

bmj.com/content/370/bmj.m30...

Another source of B12 issues and the virus.

[Nackapan in reply to Marz]

Thank you. I find it interesting.

Also it would do no harm and may help these people . /patients with covid.

[Marz in reply to Nackapan]

There is also research showing ICU patients had lower VitD levels and the same for T3 - the active thyroid hormone. T3 levels reduce naturally during illness - to conserve energy and help the body recover. One of nature's miracles ! So many basics missed .... that may help.

[Jengastar]

Hi - what dental problems have you had if you don’t mind me asking? I’ve had some dental work in last few years and asked my dentist if it could be linked to B12 but she said it wasn’t. I am sure it was, as I went from great teeth and no fillings to suddenly needing a lot done!

[Nackapan]

Quite a few on this forum have mentioned dental problems. As mouth sores and gum inflammation a b12 symptom thus makes sense.

I for the first time had oral thrush.

My teeth have fillings but it seems more than a coincidence one problem after another

The last set of problems were in the first lockdown so the delay in treatment lost me a tooth.

I had to wait fir it ti be deemed an emergency

I then had to go 4 times in lockdown. The last time was a nasty extraction.

So really the restrictions to be seen by a dentist backfired. My lost tooth and their time and exposure increased.

My daughter who is young and had no fillings has also had problems since b12 deficiency.

Sore moth

Ulcers

Infections

And now filings.

There is a connection

Again no research or interest.

[Showgem]

I haven’t had any emails from PAS and I’m also a member, my surname begins with C so probably not that.

[Nackapan in reply to Showgem]

Thrones has labouroisly typed ot out for everyone .

[Nackapan in reply to Showgem]

Odd I would send an email to PAs . I did when not receiving any

[TracyEsmond in reply to Showgem]

I am also a member and didn't receive any emails for a while.

[Showgem in reply to TracyEsmond]

I’ve been a member for a while now

[fbirder]

Nope, nor have I had that email.

[Nackapan in reply to fbirder]

Another I.t blip. Happened to me I wasnr receiving anything so I emailed PAS

[fbirder]

For anybody who didn't get the email - it is here (but only if you're a member).

pernicious-anaemia-society....

[Hidden in reply to fbirder]

I saw this list some time ago. There is just one thing missing from it though which is low B12 level. That surely must be the clincher.

[Plucky1976]

I JUST yesterday said to my husband that maybe I had covid 3 years ago! I was kidding of course. Funny thing is when I first started with symptoms three years ago, I did have one doctor say to me it could be a virus that you are just not getting over. I thought he was nuts as I was on my 3rd month following a virus but I thought surely, it can’t last THIS long! Now I wonder. As soon as I heard that patients were having problems getting enough oxygen to tissue and organs I immediately thought B12. That is exactly what I used to say on my many ER trips. I kept trying to tell them I felt like I wasn’t getting enough oxygen to places. Especially my brain. I could feel myself breathe in deeply but I didn’t get that feeling you get when you are receiving more oxygen. They just kept telling me my sats were fine. Just thinking about it makes me cringe.

[Nackapan in reply to Plucky1976]

How are you now?

[Plucky1976 in reply to Nackapan]

Well I’ve been slacking on my injections and I’m feeling that level of constant anxiety again. Some headaches and hand numbness again. I’ve been keeping it somewhat at bay because I quickly inject when I remember and have a minute. This year has been extra stressful aside from covid so I’m going to have to get my butt in gear and get back to 3 per week. I can’t help but feel sick of the constant pokes....sigh

[Nackapan in reply to Plucky1976]

Yrs so hopefully will get back on track. I do subcutaneous injections mainly.

[Plucky1976 in reply to Nackapan]

I tried that but I wasn’t sure I was doing it right even though I watched videos. I may have to go back to that. I’m just tired of all the needles. I shouldn’t complain. At least I have it figured out. So many don’t.

[Bonjourtristesse in reply to Plucky1976]

Let us know if you need some help. I find sc much easier than im.

[Bonjourtristesse]

Will be interesting to see if they get better treatment from GP’s than a lot of people here have.