Thank you

[ajervis]

For over twenty years I have suffered with malabsorption following a number of surgeries to remove diseased bowel (I have Crohn's Disease). The last time I had my bowel resected one of the surgical team told me that I would need B12 supplements but nothing ever came of it for some years. Then I started to receive intermittent B12 injections, usually 3 monthly which did help boost my energy levels for 3-4 weeks then I would relapse, often blaming the Crohn's. One GP I saw moved me onto 2 monthly injections but that was soon reverted back to 3 monthly when an inexperienced and 'Know it all' young community nurse insisted on me having my levels checked and as by this point I was buying the very expensive Hydroxocobalamin injections from the internet for monthly administration, the levels came back as normal. Then back in April this year I received a text message from my GP practice advising me that I was to be switched to tablet form due to the pandemic. I was issued with a prescription which couldn't be filled by any of my local pharmacists due to a national shortage and on discussing this with my partner it dawned that the tablets wouldn't be any good anyhow as I do not absorb. I mentioned this to my surgeon during a telephone consult and she was very concerned by this but abstained from pushing the matter due to the C19 outbreak. It was then on researching this further I discovered the PAS website and forums and found out so much info about B12 and PA . So I want to say thank you to the PAS and its members as since finding you I have been able to have an informed conversation with a GP who has now prescribed hydroxocobalamin for me to self inject on a 2 monthly basis, however had to do it in such a way that none of her colleagues would notice it and question it as being against practice policy, I have also been able to order from Germany hydroxocobalamin ampoules for injection, which are so cheap and arrived in 3 days. I am currently having loading dose injections every other day for a couple of weeks and am half way through. I must say I am already feeling the benefits of increased energy, better sleep and a general feeling of improved health which historically I had not felt and had always put down to the Crohn's disease. I'm am so lucky that my partner takes a huge interest in my health and does my im injections for me, he has also started a loading dose regime as he's been suffering with fatigue and many of the other symptoms of PA for the past couple of years and appears to have more energy and a sense of wellness about him. So again I say a massive THANK YOU to PAS and its members for improving my quality of life!

[clivealive Forum Support]

Hi ajervis Well done for persevering and for telling us your story

I wish you well

[Hidden]

What a lovely story well done and yes they are a lovely helpful and knowledgeable group of people we are so lucky x

[Nackapan]

So glad you got it sorted. How ridiculous prescribing tablets for you.

Hoping you will really benefit.

[Seth12345]

I'm new here and battling a newly discovered B12 deficiency. This group and people have been a godsend for me.

[BethattheBeach]

That's a reassuring result for you.I am prompted to suggest, though, that you need to check that you are keeping up with your cofactors.

[ajervis in reply to BethattheBeach]

Absolutely, thank you.