Back story: I was B12, Folate, Vit. D deficient with extremely low Ferritin (9). These deficiencies have been going on for years and docs were pretty clueless, made me feel like I was a drama queen about it all, and I had an allergy to B12 shots. Was finally sent to a hematologist who was ON this - she caught the low ferritin and was extremely concerned about it and convinced me to do venofer infusions. She also sent me to an allergist to be able to tolerate the B12 shots.
So I made it through all 5 iron infusions through February and I have to tell you, treating this low ferritin has made an epic change in how I feel. It was slowly like I just had more and more endurance - I could do things for a longer time without having to rest. I didn't feel so "tired to my bones", migraines went away, hair stopped falling - I honestly hadn't realized how bad I was feeling before until I started to get a bit better! I'm not 100% and may never be again as this was going on for so very long. But she retests every few months and says if I fall below 50 again, we will just keep infusing to keep it over that number!
B12 shots and I don't get along too well. I can tolerate them now but I haaaaate the way they make me feel. Sleepy and edgy at the same time for a few days. I am injecting sub q at home and split the does into twice a month to try to limit side effects. Here's the weird effect --
When I have B12 shots I GET geographic tongue. Now my tongue does swell and have issues when my B12 is too low but the shots GIVE me geographic tongue for about a week post shot... Is this a thing that happens to anyone else? Any ideas why it would happen? I hate B12 shots as it is but this is just so weird since low B12 usually causes this, then I get a shot and it causes this. Strange.
Written by
vagabondbeauty
To view profiles and participate in discussions please or .
I have fissured tongue which is related to geographic tongue. I am convinced that it was caused by B12 deficiency because after many years of treatment the splits have partially healed.
I am low in folate and vitamin d as well. Latest folate went up a bit so that was good. They have still not found a reason for these deficiencies, and I had tons of stomach tests. Lat one is a pill cam and I have to get an xray and am waiting on that for a bit because the last tests made me feel so bad.
Could the B12 be bringing my folate down right after I inject? I'm just not sure why the injections would bring on the geographic tongue unless it's messing with a different vitamin -- or my body just hates b12
I presume you have had thyroid bloods taken at some point. it might be worth posting them on thyroid UK with a list of symptoms to see if something thyroid might be the underlying cause of all these deficiencys.
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.