Hellow lovely PA folks and mods/ forum leaders.
With the classic set of symptoms of peripheral neuropathy burning / tingling hands, feet, brain fog, carpel tunnel hand / arm aches, with endless tiredness and low mood thrown in for dessert. My own health detective work lead me here.
And here, I found the most tremendous amount of support, kindness and guidance. I learnt a lot from this forum, and from many of you with your replies. This raised my knowledge and understanding to a level that cleared my views. It also calmed the rising tide of fear and anxiety I had, had over my worsening symptoms.
Yesterday, I reviewed my extensive set of blood tests, nerve tests, and urine tests with a private endo. Who was lovely, and listened! Unlike my GP who seems to start from.. I don't believe you ...
Long story short, he felt that I was more likely to have an immunological problem such Rheumatoid Arthritis or CIPD. But maybe with some form immuno-gastritis causing a consistently low folate and close to abnormal RBC indicators. He is advising my GP to refer me to a Neurologist, given I have confirmed nerve damage in my feet and consistent / worsening set of neurological symptoms.
The nerve damage I have, I feel I have to lay at the feet of my GP. He suggested I need "talking therapies" instead of the nerve tests I had to push and push for.
Anyways, I will be pursuing my Endo's advice of course. But I wanted to pass that he said something that almost made me want to cry. He said " well done you for listening to your body, and trying to learn about what you are dealing with .."
I told him of Health Unlocked (he wasn't aware) saying it was packed full of people doing the same, and I benefitted from the help of the forums within it.
Now, that leads me sending my sincere and warm thanks to all who have helped me in the past weeks. Some in here have and are facing tremendously difficult times and trials. I can only marvel at their strength. But this place helps us all, and the people in it make it that way.
You are a great lot. A lovely bunch. You are good people.
I will be heading off to learn more about my "probable" condition on other forums, as us health detectives do! So, I am sending out my thanks, and wishing you all well ❤️. ..and let's never stop looking after our health, looking each other, and trying to get better! K🌻