Injectable B12 - Petition Reminder fo... - Pernicious Anaemi...

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Injectable B12 - Petition Reminder for UK

Sleepybunny profile image
13 Replies

Some recent threads have discussed that it's getting harder for UK forum members to order injectable B12 from European pharmacies.

Here's a reminder that there is currently a petition to get injectable B12 available over the counter in UK.

change.org/p/dr-june-raine-...?

The petition had 100, 875 signatures when I last checked.

Tracy Witty has campaigned on this issue for 8 years.

b12deficiency.info/eight-lo...

Some people have left comments under the article.

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Sleepybunny profile image
Sleepybunny
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13 Replies
Sleepybunny profile image
Sleepybunny

Hi All,

I've been thinking about what to do if it becomes impossible to get B12 ampoules from the German pharmacies.

1) B12 injections from private GPs in UK - expensive, many will not have the financial resources.

2) B12 injections from UK beauty clinics - expensive, I have some concerns about hygiene/sterile conditions.

3) Short breaks to European countries where it's possible to purchase B12 ampoules from pharmacies.

I would appreciate if someone could comment on the legal side of bringing B12 ampoules through UK customs as I'm not sure.

Some people have accessed a dried form of B12 in UK but it needs injectable quality saline solution added and this is not available in UK. I have serious concerns about the risk of contamination with this form and would not use it.

Clare184 profile image
Clare184 in reply toSleepybunny

it is a real worry, I like many forum users dread the idea of this being taken away and the decline in health that would go with it. I wonder where beauty salons buy their b12 from, are they currently buying abroad or is there somewhere you can them in the UK as a salon.

Jillymo profile image
Jillymo in reply toSleepybunny

We must incourage people to sign in the hope this petition will reach its target. We have put up with our ailments for long enough without being heard now it's time to shout.

I am sick of fighting and not being listened to and have signed numerous petitions as well as batting letters to my local Mp - Hmm does Mp stand for muppet ? ? ? 🤓

in reply toJillymo

my M.P is a waste of time. How many M.P.s are doctors .... Perhaps they are the ones we should be targeting with emails and letters.

Jillymo profile image
Jillymo in reply to

I have tried being polite, written begging letters and some which were rather blunt. I have batted letters all over the damned place to no avail they have all fallen on deaf ears.

I have yet again signed the petition and hope others do the same. 😘

BrecklandRanger profile image
BrecklandRanger

Signed. Been out the loop, but why is it getting more difficult to source from Europe?

Sleepybunny profile image
Sleepybunny in reply toBrecklandRanger

See wedgewood 's post "About German online Pharmacies" below.

WorkingProgress profile image
WorkingProgress

Signed and donated and yes ....where and how do these guys get their B12 ampules legally. There has got to be a way we can do this for ourselves.

Sleepybunny profile image
Sleepybunny

It concerns me that if B12 supplies from Europe dry up then people may turn to less safe sources.

One of the people in this next link mentioned using veterinary B12.

pernicious-anaemia-society....

I do not think this is a good idea. I assume that hygiene/sterility/purity may be of a lower standard.

Sleepybunny profile image
Sleepybunny in reply toSleepybunny

When I checked petition recently it had over 101, 000 signatures so please think about signing it if you're in the UK.

SKYROCKET123 profile image
SKYROCKET123

I've signed and shared, I feel utterly sick at the thought of not being able to SI. My GP wasn't remotely interested in the fact I couldn't walk and became so ill because I was 'within range' but from the excellent advice of you amazing people on here I am on the mend. I think PA was what killed my Dad. I feel so guilty that I didn't realise it sooner because we could have saved him if we had known.

Sleepybunny profile image
Sleepybunny in reply toSKYROCKET123

Please don't be weighed down with guilt.

I felt like this about my mum who had many symptoms similar to B12 deficiency through her life but I'm pretty sure she was normal range. She faded away into dementia.

The truth is that the symptoms of B12 deficiency should be spotted by doctors whether someone is normal range or not.

I cope with my feelings of anger and guilt by trying to help others get the info they need.

I'm about to give Martyn Hooper's book to someone I think has B12 deficiency.

SKYROCKET123 profile image
SKYROCKET123 in reply toSleepybunny

Honestly I don't think I would be here now if it hadn't been for you, Wedgewood and everyone else who advised me. I felt like I was dying minute by minute. I didn't even have the brainpower or energy to respond to the helpful replies on my posts and felt awful about it. I'd love to know what is causing us all to be B12 deficient. You'd think medical science would be looking into that but unless we are lucky enough to have a good GP (and I don't!) they don't care. My Dad was diagnosed with Alzheimer's but although some of the symptoms fit the rest didn't and they seemed to just stick that label on him. He had decades of gastric problems and a heart valve replacement and so took assorted meds since he was in his 30s. I can remember emailing Dr Chandy about B12 but Dad's GP denounced it all as rubbish. 😔 Thank you to all of you who tirelessly post and help others. We need you!

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