Pernicious Anemia Information - Pernicious Anaemi...

Pernicious Anaemia Society

32,623 members23,985 posts

Pernicious Anemia Information

MightyMay profile image
9 Replies

Good evening all. I have not been on in awhile but have been going through a rough patch.I have both pernicious anemia and I suffer from being hypothyroid. I take 175 mcg of Synthroid and I get B12 injections every 2 weeks . I also supplement with sublingual. I was hoping someone would be able to tell me if MMA and homocysteine levels remain high even with B12 treatment or does the levels go down to within range with treatment?

Written by
MightyMay profile image
MightyMay
To view profiles and participate in discussions please or .
Read more about...
9 Replies
wedgewood profile image
wedgewood

Once I started to self-inject weekly B12 ( Although diagnosed PA. patient with neurological symptoms ) my GP would only let me have 1 injection every 3 months— insufficient), my homocysteine level dropped from 16 to 7 .

MightyMay profile image
MightyMay in reply towedgewood

Thank you for your response....hope you're better now.

jade_s profile image
jade_s

Yes they are supposed to drop with sufficient b12. You might consider increasing frequency especially if you still have symptoms. Plenty of us need weekly, EOD, daily, or even twice daily, even years after starting treatment.

MightyMay profile image
MightyMay

Thank you for your response...I don't mind getting injection, but I'm squeamish when it comes to self injections. I'm trying to get up the courage to do it 😩 😄😊.

jade_s profile image
jade_s in reply toMightyMay

You can do it, I promise you! My mother was getting progressively worse on tablets but didn't want to inject because she was so scared of needles, her stomach would turn! My intention was to go slowly, i let her see the subcut needles I was using and watch me do it, the next day I had her put the needle together and fill the syringe and I did the injection for her. Next day she went for it herself - I was actually surprised! Very hesitant and scared of course, but she did it! And now she brags about how needle phobic she was but did them anyway :) Still does them and she feels SO much better. As we all do when we start injecting at the frequency we need. :)

Take the plunge, so to speak :) Take your time, do it in steps, acclimate yourself. When it comes to the actual injecting, it is VERY scary at first, I won't sugar coat it, but it's just a matter of training your brain to accept that it's normal to poke yourself, and that just takes repetition.. after a few times it won't be scary at all. :)

There are also auto injectors that you load up and then just press a button to inject - you never see the needle going in. Some people swear by them.

MightyMay profile image
MightyMay in reply tojade_s

Thanks for the encouragement !!!😊

Nackapan profile image
Nackapan in reply toMightyMay

I think of my husband who does 4x a day insulin sc injections

They used to be syringes and needles.

Now a pen and better needles

He was so scared squeamish at the start.

Or push again at your surgery

Nackapan profile image
Nackapan in reply toMightyMay

I do subcutaneous b12 injections. Just as effective I've found after 2 yrsrs.

I still have the IM ones at the surgery hoping they will be more effective or last longer .

Apart ftom 1??

Still waiting

keith1954 profile image
keith1954 in reply toMightyMay

Once you have done it it's easy and feel better for it.

Not what you're looking for?

You may also like...

Pernicious anemia

I got diagnosed with pernicious anemia in 2015 the GP start me of with b12 injections and folic...
Demij profile image

Pernicious Anemia

Having had b12 injections 3 monthly for 3 years for Pernicious Anemia I am told by my gp that I...
babs67 profile image

Pernicious Anemia

I have been diagnosed with B12/Pernicious anemia. I was taken off injections because my b12 level...
Missy-Mae profile image

Cancer/pernicious anemia?

When I read that people with pernicious anemia have a higher risk of developing cancer it really...
Krealan profile image

Pernicious anemia and urticaria (hives)

Hi I have my b12 injection every two months for the past ten years ,also have treatment for...
Alice70 profile image

Moderation team

See all
Gambit62 profile image
Gambit62Administrator
Foggyme profile image
FoggymeAdministrator
taka profile image
takaAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.