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Dogwalker123 profile image
8 Replies

Hi,

Do you guys have any advice for these levels as injections have been withdrawn from my 15 year old daughter as they say she can take b12 by tablet form. I’m just trying to consider if paying private for them will be needed with levels like these, she was 10 weeks on from an injection at the point of these blood tests.

Many thanks x

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Dogwalker123 profile image
Dogwalker123
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8 Replies
nellie237 profile image
nellie237

Has the GP prescribed iron?

Dogwalker123 profile image
Dogwalker123 in reply to nellie237

Hi, yes iron has been prescribed I just wondered about her b12 levels.

nellie237 profile image
nellie237 in reply to Dogwalker123

Many people on here know much more than I do, and I'm sure you'll get some good advice.

Personally, I would push for injections to continue, at least until the iron levels are sorted out. The iron is going to be upsetting her gut, and you don't really want to be adding more into the mix (apart from vit C to help the iron).

Also the B12 level seems low for somebody receiving injections. Teenagers are going to be different to adults too.

Nackapan profile image
Nackapan

Depends on why b12 injections were prescribed In the first place Also how shd is and what are hef symptoms

Too much if this is going on.

They tfuec stopping my 91 year old mums b12 injections.

Ivd got them reinstated pointing out shd wax prescribed injections as an absorption problem and tablets don't work.

Write to your Gp if you think she needs them continuing it symptoms sf ag what point they return

Dogwalker123 profile image
Dogwalker123 in reply to Nackapan

Hi, so she started loading injections as her levels were very low, they say her intrinsic factor is negative, how would I read her intrinsic factor on a blood report? She still is very tired, her dizziness isn’t too bad now.

Nackapan profile image
Nackapan in reply to Dogwalker123

I think it's positive or negative for antibodies. IFA test .A negative result does not rule out PA

A positive result means she has PA

If her diet is good ask why her levels went so low ?.

If it is dietary after quickly raising levels with injections some are okay on b12 tablets.

If just seems odd just tk stop them.

She still has symptoms

Gambit62 profile image
Gambit62Administrator

The levels seem quite low for someone who is on injections. If your daughter has a diagnosis of pernicious anaemia the the current guidance from the BCSH during the covid pandemic is to discuss with patient and try tablets tub tell the patient to come back if they find symptoms return. This page on the PAS website may be of use

pernicious-anaemia-society....

Gambit62 profile image
Gambit62Administrator in reply to Gambit62

Just noticed the statement on not testing B12 levels if on IM injections - the test is difficult to interpret in these situations and certainly can't be used to manage the condition.

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