Autoimmune issues : A friend has auto... - Pernicious Anaemi...

Pernicious Anaemia Society

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Autoimmune issues

pvanderaa profile image
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A friend has auto immune issues for reynauds and livido reticularis which seems to be a sign of an undiagnosed disorder; They get tested twice a year for lupus because, according to them, that is what it often signals.

Any known connection to B12 deficiency? It has not yet been tested as far as I know.

Thanks in advance.

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pvanderaa profile image
pvanderaa
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wedgewood profile image
wedgewood

People rarely get one autoimmune condition . Common to have 2or 3 . Pernicious Anaemia is an autoimmune condition - that is the only connection as far as I know .

Sleepybunny profile image
Sleepybunny

Hi,

Has your friend been tested for Hughes Syndrome ( also known as Antiphospholipid Syndrome APS)?

Livedo reticularis can be a symptom of Hughes Syndrome/APS.

Links about APS

nhs.uk/conditions/antiphosp...

lupusuk.org.uk/medical/nurs...

APS Support UK

aps-support.org.uk/

I came across an article about Livedo Reticularis and Pernicious Anaemia published in 2003 but can't find a link to a summary/abstract of the article.

There is info about Livedo Reticularis on Primary Care Dermatological Society website.

This is a website aimed at doctors and some of the info may be upsetting to read.

Pickle500 profile image
Pickle500

Appreciate this is quite an old post but Ive suffered on an off Raynaud's symptoms throughout life. Never diagnosed.

When I became B12 deficient the tops of my hands turned purple.

After a year of B12 therapy and self injection the colour has disappeared.

Traditional Doctors never took any notice. I did go to a Chinese Dr though, when my deficiency really ramped up, and he said to me 'Raynauds'. I looked at my hands and had just got used to seeing bad circulation. But he checked me out, my tongue, pulse, etc, and told me I was malnourished.

Thought that may be helpful to share

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