if only doctors would listen

[Reallyunwell60]

I was diagnosed with Pa in 1999 and given injections for life around the beginning of 2017 I started taking apple cider vinegar after meals and also a carb free and grain free diet I was feeling quite well at that time and the doctors did the yearly blood test and said my blood tests had came back normal so they stopped my B12 injections . in 2017 the last three years have been he'll so this year they retested me and said your ok your serum vitaminB12 400ng/ but I still have large red cells . and still feel unwell the head finds it so hard just to think I feel like my mind is shutting down pulpitaions blurred vision tingles In the hand feet numbness in my legs. depressed don't know were to go when the doctors won't listen to you sorry about the grammar.

[Hamayeshguy]

I have the same problem. I was diagnosed with low B12 in 2013 and since then I had just 3 times injection then I found my vision is getting blurred and have double vision. And showing gastorparesiss. But I mistakenly supposed my problem is because of autoimmune disorder that's why I started to exercise . Then worst neurologic symptoms started to roll out. Heart palpitation, shortness of breath severe dizziness and many other bad symptoms. I visited many doctors but everything was normal even b12 and folate iron . No diabetic no thyroid problem nothing. Then I started to take B12 sublingually by myself and I found I'm getting better and had 5 injection IM monthly but doctor stopped to continue because my blood work was normal. After taking more than 3 month timed release and sublingual B12 I feel better and most of my symptoms are gone. But due to covid outbreak I had time to sleep and now I sleep 12 hours a day and feel it worked alot for me. I'm 48 yo male and even my eyes are getting better. But still have tinnitus and feel weakness in my gut. I'm wondering if I start to self administrator B12 in stomach subcutaneously does it make faster my recovery?

[waveylines in reply to Hamayeshguy]

There is a lot of ignorance in the medical profession around b12 deficiency. Once you are on injections they should not be testing your b12 level!! It should then be treated by symptoms. For neurological symptoms like yours the injections should be every other day. You cannot have a too high a level as your body excreets out any excess. So its a nonsense to stop injections because a a blood test shows a high level.....it will on injections but is not dangerous and they are wasting money by continuing to test and treat by the blood levels. Worse too they will cause harm by treating you like this. Refer them to Nice guidelines!

[Hidden in reply to Hamayeshguy]

yes agreed. doctors need to treat the patient not the labs. b12 is not my first rodeo and i hear similar sentiments in many other areas.

rule # 1: people have entirely too much faith in labs. unfortunately you need to vet every lab test. some are solid. some are sh*t. i was about 40 when i figured this one out. doctors love to paint by the numbers. at least here in the US. it's a sad profession when you are more bound to your dogma than your patient. one size does not fit all.

given the safety and economy of B12 i think the hesitation from doctors is cowardly.

the way to sort this out is by personal trial at very low risk and cost.

😂

[Ryaan]

To put it in short doctors don’t listen and unfortunately that is the case for most people on here sadly. It’s best to buy your own and self inject.