Pernicious Anemia in people younger than 30

[Dakota17777]

Hello, i have been on this forum for around a year now and it has really helped me stay positive in my recovery. I am fully recovered and I am now 20 years old. I still wonder sometimes what couldve caused my pernicious anemia, knowing that my endoscopy and colonoscopy came back negative. Also, I wanted to know if there are any more people my age with pernicious anemia.

[Nackapan]

My daughter was younger. U fortunately not diagnosed. So glad hear you have good health and diagnosed and treated in time

Auto immune diseases can happen to anyone at any age

[Curtain96]

My son has confirmed PA, he was 12. Myself and my mum also have it

[deniseinmilden]

I was in my teens when my symptoms became a problem to me but I didn't get diagnosed until I was in my 40's and half dead with ridiculous amounts of damage!

If you don't hear from any youngsters this time of posting, keep trying and looking through the other posts here because there are plenty of you and I'm sure they'd also appreciate to hear from others like you/themselves!

[Milley2]

How did you recover

How long

Dud you have frequent b12

Other supplements ?

X

[Dakota17777 in reply to Milley2]

It took me 6 months to fully recover, I self inject weekly

[Milley2 in reply to Dakota17777]

Any other things you took with it

[MoKayD]

My daughter was diagnosed this year at the age of 29 but I suspect she was B12 deficient for years. In her case I believe it is an inherited condition. My sister, my daughter, my cousin, my cousin's daughter and myself have all been diagnosed with B12 deficiency with the last couple of years. I also suspect my grandmother had B12 deficiency.

[JBCADR]

All three of my kids are diagnosed as B12 deficient and are getting B12 injections. I was diagnosed PA but they all tested negative. My kids are 14, 11 and 7! So you aren’t alone!

[helvella]

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[Sleepybunny]

Hi,

There are stories about young adults and children with PA and other causes of b12 deficiency on these blogs below. Some of the stories may have upsetting details.

Martyn Hooper's blog about PA

martynhooper.com/

B12 Deficiency Info blog

b12deficiency.info/blog/

All these books have some case studies of young adults and children.

"What You Need to Know About Pernicious Anaemia and B12 Deficiency" by Martyn Hooper

Martyn Hooper is the chair of PAS (Pernicious Anaemia Society).

"Living with Pernicious Anaemia and Vitamin B12 Deficiency" by Martyn Hooper

Has several case studies.

"Could it Be B12?: An Epidemic of Misdiagnoses" by Sally Pacholok and JJ. Stuart (USA authors)

Very comprehensive with lots of case studies.

PAS (Pernicious Anaemia society) has leaflets/articles about juvenile PA.

pernicious-anaemia-society....

Links about B12 deficiency in children (mentions teenagers)

b12deficiency.info/children...

stichtingb12tekort.nl/engli...

[PaintLadie]

I am in my thirties but was diagnosed in my early 20s. I had been extremely sick since my teens with no diagnoses. I literally went to bed every night not expecting to wake up in the morning. I could not study and slept in many of my high school classes. I got plenty of "well she looks healthy" from doctors. When I was finally tested, by a doctor who had no problem testing me for everything, I was Megaloblastic so there was no missing it. My doc was confused because I'm Hispanic. She said that this is usually more common amongst people of Northern European decent(which is in my ancestry). Which could be why I wasn't tested for it sooner. I don't know what caused mine. I do have many food allergies I've struggled with since childhood and was not always fed properly according to my food allergies, but I do not know if that was the culprit. I never received any clear answers other than I have no intrinsic factor and I have PA. It took until I was about 33 before I could finally get proper dosage and a steady affordable supply of Hydroxocobalamin Injections that I can self administer. I live in the USA and am finding medical here is severely lacking for the average person. I was also told that the B12 deficiency is not lucrative business since it is only a vitamin deficiency and easily treatable, so many doctors don't give much thought to it.