Got on my bike: 2 years today since I... - Pernicious Anaemi...

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Got on my bike

Nackapan profile image
59 Replies

2 years today since I collapsed and the start of getting a b12 deficiency diagnosis.

I rode my bike!!

Not far (like to the end if the road and back) but really chuffed ad it's the first thing ive done that feels normal.

My balance was fine .

Better than walking actually lol.

Tiny steps.

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Nackapan profile image
Nackapan
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59 Replies
Narwhal10 profile image
Narwhal10

Hooray that’s fantastic news Nackapan. So pleased for you and thanks for sharing. X

Nackapan profile image
Nackapan in reply toNarwhal10

It's a start!

fbirder profile image
fbirder

Wow!

I must sell my bike. I bought it for £800 just before I started to get really bad. Ridden it four times and my balance is so bad I'll never ride it again.

Nackapan profile image
Nackapan in reply tofbirder

Yes you are safer walking !

wedgewood profile image
wedgewood

speechless with admiration ! So.........👍👍👍

Nackapan profile image
Nackapan in reply towedgewood

Thank you

Janma123 profile image
Janma123

That’s brilliant news - well done

Nackapan profile image
Nackapan in reply toJanma123

Will hopefully keep it up. Slowly slowly like a child on their first new bike lol

Foggyme profile image
FoggymeAdministrator

Fantastic news 👏👏⭐️X

Nackapan profile image
Nackapan in reply toFoggyme

Thanks. It did feel good and a bike has always been so normal to me as brought up without a car so cycling transport from a very early age.

I was amazed I could balance . Early days but chuffed. I'm on the bed now lol

Seth12345 profile image
Seth12345

That's excellent progress! Thanks for sharing this with all of us. We've all been praying for you throughout this.

Nackapan profile image
Nackapan in reply toSeth12345

Thanks. Its a start.

Sleepybunny profile image
Sleepybunny

Great to have some positive news.

Nackapan profile image
Nackapan in reply toSleepybunny

Yes a bot of positive news goes a long way!

Well done you really pleased for you xx

Nackapan profile image
Nackapan in reply to

Well it make a change . Hope it goes well next time I try. Wont be today looking outside!!

in reply toNackapan

Gosh no youll be paddling today not pedalling 🤣

Nackapan profile image
Nackapan in reply to

No staying in today!!

in reply toNackapan

Me too they said high winds later along with the rain so im staying put.its lovely now to be able to look at the garden and the lovely big tree out there first thing I did was buy a birdhouse and loads of food,my cats are fat indoor cats so the birds are perfectly safe and the feeding house keeps the cats entertained.stay safe nackapan xx

Nackapan profile image
Nackapan in reply to

Enjoy your new house with a garden.😼😼 🌷🌳

in reply toNackapan

Thank you I couldn’t be happier x

That’s amazing! I know how hard that would have been x

Nackapan profile image
Nackapan in reply to

Yes. I suddenly made up my mind to at least try.

still_elsewhere profile image
still_elsewhere

I’m so happy for you! It must feel so good to return to something you love.

Nackapan profile image
Nackapan in reply tostill_elsewhere

It just felt normal for me. Brief but normal.

Bonjourtristesse profile image
Bonjourtristesse

So pleased for you 😊

Nackapan profile image
Nackapan in reply toBonjourtristesse

Thanks

Kerrierach profile image
Kerrierach

Well done!

Nackapan profile image
Nackapan in reply toKerrierach

Thanks

ClareP5 profile image
ClareP5

awesome - that's wonderful news:)

Nackapan profile image
Nackapan in reply toClareP5

Yes I had no idea how it would go .

Try and try again. Thanks

Nackapan profile image
Nackapan in reply toClareP5

Yes a start thanks

Nackapan profile image
Nackapan

Yes will try and repeat it soon. Small but significant. Thanks. People on here get it more than friends!

Lasue profile image
Lasue

Wonderful tiny steps as you say but you’ll be going good and proper in no time so you keep it up each time you do you’ll feel marvellous so very pleased for you 👏👍

Nackapan profile image
Nackapan in reply toLasue

Yes. No idea how it was going to go. So rollercoaster. Fatigue is so awful isnt it. Needs a new name.

JanD236 profile image
JanD236

Fantastic, well done! Something you’ve been wanting to do so that’s just great!

Nackapan profile image
Nackapan in reply toJanD236

Yes I was sad at the thought of never riding it again. Long way to go go yet. A start.

Showgem profile image
Showgem

So good to hear this.! After a horrid experience when I tried to ride my bike last year I've not felt up to trying to ride it this year. Hoping my balance improves enough to have another go. Like you I've riden a bike all my life and I miss it. You've given me some hope x

Nackapan profile image
Nackapan in reply toShowgem

Yes . Tiny progress. I only went up the road and back. Balance was good though.

Perhaps get a lower bike ?

I can't see me doing my weekly shop yet!! Just har to try and mark 2 tests with some progress . Could've gone wrong very easily a I've no ide how my body responds. I still walk in a circle si I can get back.

Showgem profile image
Showgem in reply toNackapan

The trouble is we live half way up a hill in the countryside. I ran out of steam and strength on the up hill. Downhill was okay ish but I was so slow trying to cycle on the uphill slope I just couldn't keep my balance, fell and collapsed in a heap on the road. After sitting there a while getting my breath and the use of my legs back I walked home leaning on the bike and went to bed and couldn't do anything for days.

Perhaps we need to get a bike carrier and drive somewhere flat to start with!

At least I'm walking without a Walker now so you never know 🙂

Nackapan profile image
Nackapan in reply toShowgem

Oh yes you need flat. I cant cope walking uo a slow let alone cycle.

Great you are walking without an aide.

At the start I coukdnt walk without bouncing off walls even getting g to the bathroom.

I got stuck on a walk once my legs just went like jelly. That was after a small slope . Had to sit there for ages . Got home and got a migraine for my efforts. I'm in Essex so pretty flat I thought before this condition!

Good idea getting your bike somewhere flatter.

pitney profile image
pitney

Fantastic ,one step at a time (or should i say one pedal rotation at a time) so pleased to hear you are improving :)

Nackapan profile image
Nackapan in reply topitney

Definitely. Rollercoaster. On my bed again this a.m but more bearable when you've actually done something

Vps1980 profile image
Vps1980

Aw yay so happy for you ❤️ Xx

Nackapan profile image
Nackapan in reply toVps1980

Thanks

Cherylclaire profile image
CherylclaireForum Support

You go, girl !

Happy to hear that you've got wheels- but take it easy, okay ?

Great news.

Nackapan profile image
Nackapan in reply toCherylclaire

Oh yes im being careful.,dont want to lose more teeth!🤭

Very early days.

Lovely feeling though.

Had no idea if I'd balance.

Thanks . Hope you okay.

Cherylclaire profile image
CherylclaireForum Support in reply toNackapan

- I was thinking more about you risking another fall.

Don't worry about teeth- you can always have some of mine, Nackapan -

I've got 4 on the "at risk" list now !

Nackapan profile image
Nackapan in reply toCherylclaire

Oh no!!

Ghound profile image
Ghound

Wonderful news - well done !! 👍😃 x

Nackapan profile image
Nackapan in reply toGhound

Yes its progress . Thanks

barbegrub profile image
barbegrub

Wow that's great.

So pleased for you.

Nackapan profile image
Nackapan in reply tobarbegrub

Thank you so much

Litatamon profile image
Litatamon

Nackapan, what a beautiful post to find this morning. Made my day. So happy for you.

-------

"Better than walking actually lol."

I live on my bike. And from day one it has always been easier than walking. With walking, I still have to say "right - left - right - left" in my head. People think I am fine watching me walk but it just isn't there YET. I also still have proprioception issues. And mentally talking to myself is exhausting.

But for whatever reason biking has always been better and easier. And I am so incredibly thankful to have that ability.

Just wonderful news Nackapan!! Enjoy.

Well done! You have just reminded me about mine

Nackapan profile image
Nackapan in reply to

I got mine 'serviced ' as hadnt ridden it for over 2 years. A local person was setting up a small business and collected it. I had to make sure it was safe!

in reply toNackapan

I actually forgot my lovely bike was covered up in shed it's coming out I mean it Thank you I hope you get out n enjoy at least a bit of what we enjoyed before these horrible auto immune problems that knock the stuffing out of you still battling along but so much better but not as I was

That's the best news I've heard all day! Thank you so much for sharing, and giving me hope :-)

Nackapan profile image
Nackapan in reply toBostonterrierlover

Thank you. Only a start. But felt great!

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