Prayers, good vibes, etc., please!

[MrsTuft]

I travel long-haul tomorrow for the first time since my legs were damaged by B12D. If you can spare and prayer or send some good vibes I’d be so grateful thank you. 🙏

[jade_s]

{{{ Sending good vibes!! }}} 🐞🌺🦋🎉🎊 ✈️

Remember to hydrate enough, walk around, do sitting exercises, and hope it goes by quick! Xxxx

[MrsTuft in reply to jade_s]

Thank you 💕

[Cobalt1312]

Praying for you MrsTuft! 🤗🙏💗💪🌼

[MrsTuft in reply to Cobalt1312]

Thank you 😊

[wedgewood]

Thinking of you Sending good vibes . That’s good advice from jade_s

[MrsTuft in reply to wedgewood]

Thank you 😊

[rogergee]

I've sent you some Reiki. Enjoy your travels.

[MrsTuft in reply to rogergee]

Thank you 🙏. So far so good (in transit now). I think it’s working!!!

[rogergee in reply to MrsTuft]

Well done! Now to stop thinking about them...

[Thrones12]

have a lovely holiday Mrs Tuft take some lavender oil with you to relax you on your flights. Everyone will be thinking of you and sending good vibes have fun xx

[MrsTuft in reply to Thrones12]

Thank you. It’s silly to be nervous as I used to fly the world with my job but since I was housebound last year and still not normal with my legs since the B12 crash I’ve lost confidence. This will be so good for me if I manage it. And what a lovely group. Thank you all so much. X

[Narwhal10]

Sending good vibes to you. Hope it went well. Apologies for late reply ❤️

[MrsTuft in reply to Narwhal10]

Thank you 🙏

[Jillymo]

Bless you safe journey. 🙏 ✈ 🤗

Now try and stop worrying and enjoy yourself. 😘

[MrsTuft in reply to Jillymo]

Thank you 😊

[WIZARD6787]

You got this!

[MrsTuft in reply to WIZARD6787]

Thank you! It will improve my confidence nonend if I manage it. I’m on my way!!

[Litatamon]

Mrs. Tuft, can you explain what happened to your legs - thank you. Almost immediately not long after loading doses I had many issues that had been going on for years, heal. But my legs remain to be an issue, despite no muscle atrophy almost four years later.

------

Hope you have a wonderful holiday.

[MrsTuft in reply to Litatamon]

I had Cyrene fatigue and foot drop for years that was ‘cured’ with B12 injections every 8 weeks (as long as I didn’t over exert myself). Two years ago next month I had major surgery that involved nitrous oxide anaesthetic and nitrofuratoin antibiotics - both of which deactivate B12 in the body. I woke and and couldn’t feel or use my legs. It was terrifying. Orthopaedics said spine okay. Neuro said soine and brain okay. Was diagnosed FND. But then I did my investigations into what I’d been given and found the above and started SI daily and my legs are coming back. They were pretty good until I got covid but that set me back. I live in hope! Sorry you’re having similar. There are a few of us. X

[Litatamon in reply to MrsTuft]

Oh I am so sorry Mrs. Tuft. Hope it is figured out.

Your post is very helpful to me & I thank you, even though I wish you did not have the issue. Foot drops, gait changes & falls were some of my earliest symptoms. And they gave instant clarity, which was wonderful, because I was a crazy walker. Full of long distances and vitality. Walking was my joy.

I had miraculous recovery on many issues, but despite no atrophy my leg muscles do not work still. I am ten steps - stop. I am chanting right, left, right in my head. Strangely enough they are more productive on my bike in ability, which doctors take as a crazy train probably.

I had a breakthrough this year in that I realized at times I could literally press a sharp.object to above the knee and feel little to nothing. I of course had this pre-diagnosis but did realize it remained. But at times it would be back in feeling somewhat & I would go, Did I have b12 shot? Did I eat more protein? Is my iron up? Did I make sure to have more electrolytes? I could never find the answer. And I knew this sharp object, usually my nail, was legit as days later I would sometimes see I had broke the skin.

I feel I am getting close, and trying to remain hopeful. I have it narrowed down to -

*vitamin b12 frequency

*vitamin d supplementation, and at a higher level (making sure I check levels for safety)

*Or cellular t3. The first time I had t3 (Cytomel) added to my thyroid hormones after my thyroidectomy I felt a definite leg surge. It disappeared quite quickly. But I suspect it was because, as explained to me by a brilliant woman over on the Thyroid section, it had to go over to other needed places in the body - after the initial surge.

(I also unfortunately might have felt a surge on the two times I had to take a short dose of steroids. That does not help as I don't want that long term.)

Thank you Mrs. Tufts I feel more optimistic reading your post.

I can not believe it has been around six years of not using my legs properly. In the beginning I would say over and over I feel suddenly disconnected from my legs - like they do not know how to move, but I was caregiving for my mother and could not give it attention it needed.

Something is wrong with our health systems where doctors have heard for six years I can no longer walk properly & nothing.

But I will be on my own case and will not give up.

Sorry for the length. Hope something I said brings some added clarity for your case. If not a moment of clarity, at least comfort.

[MrsTuft in reply to Litatamon]

I too have taken comfort from your reply (although I don’t wish this on anyone). Yes exactly how can doctors hear that a middle 40’s woman can’t use her legs normally and not seem concerned? In fairness my new neurologist is looking into it with me. The last one said ‘FND, good luck, goodbye’! I think if its not coming from the structure of your spine and no obvious MS, then they’re stumped. And like you I was a crazy walker - it gave me so much joy - I knew something was very wrong. I too know that my muscles haven’t atrophied as even when I couldn’t walk to stand properly I exercised my legs lying down. It’s got to be the nerves. And yes I too have to think about walking or standing - something I used to take for granted like breathing. Like you, I continue my investigations. I wonder about B12 injection frequency, folate and iron levels, my neuro is checking the brain and spine again, I keep exercising, i work on starting calm and joyful. I believe I will get my legs back. It’s been two years next month and I’m better than I was but not ‘normal’. Sending hugs to you. X

[3rdNettydoon]

Prayer winging it's way right now.God bless you n yours.

🙏

[MrsTuft in reply to 3rdNettydoon]

Thank you so much. I’m in transit and so far it’s okay - I think it’s all the good vibes!!

[Sleepybunny]

Hope the flight went well and that you're enjoying your holiday.

[MrsTuft in reply to Sleepybunny]

Thank you! I made it!! It’s lovely thank you. Sending you all good wishes too. X