I have been suffering for 3 years with severe pain down one side mainly around upper right quadrant I have had several diagnosis but none where conclusive after having 20 or more Endoscopy procedures , a sphincteroctomy and Botox injections to Sphincter of oddi and pancreatic duct stent ,Removal of gall bladder. The only conclusion a lame diagnosis of visceral hyper sensitivity. Basically despite my symptoms of the following
pain that’s debilitating requiring Pain relief of Morphine,amyltriptaline etc.
The pain has been building over a period of about 3 or 4 years previously until an episode that required hospitalisation 3 years ago.
I have also in addition to the pain have no energy I suffer from pins and needles and numbness in hands and feet and lower back on occasions. I started going grey in my twenty’s. I also suffer from bouts of extreme diarrhoea
My family history is my mother is a type 1 diabetic and has been diagnosed with pernicious anaemia
my son is also a type 1 diabetic he was diagnosed at 13 .
I have not been diagnosed with pernicious anaemia yet as I haven’t had much help from my gp previously as a result of lots of tests with no clear diagnosis and now with pain specialist saying i will have to learn to manage the pain and suggests neural pathic block. It’s very distressing
Having just found out that my mum is pernicious anaemia and has vit b12 injections in a conversation today. In fact I haven’t heard of this before today but looking at the symptoms and the fact there is no explanation for my pain and associated symptoms I’m still shocked my mum didn’t mention it sooner it’s only been 3 years I’ve been of work.
I don’t want my Doctor thinking I’m self diagnosing and dismissing my findings.
Thank you in advance.