Feeling worse in a lot of areas. Advice needed.

[buster_uk]

I started to self inject last Friday night.

Using the hydo. Saturday I had a fairly good day. But from Sunday until now things have gone down hill. Pain in my arms, hands, legs and feet have become almost continuous. Strange pain almost like my viens have become tight. Twitching has come back with a vengeance. Calves are painful, new pins and needles. Dry mouth. And palpatations on a night. Tiredness. Pain in my hips. Vivid dreams. Slight flu like symptoms.

Slight dizziness upon standing.

Things that have eased are my jelly legs and slight improvement with my mood.

I take ferrous iron tablets, folic acid, multi vitamins and minerals, vit c, fish oil, vit d, magnisium and two bananas a day. Big dose b complex.

I think looking back I've been deficient for at least ten years with neuro since four years.

Why are things getting worse than they were?

[Nackapan]

I became aware of defiency on October last year. I got alot worse before any improvements. It took to reinstate loadding doses from late December to start getting some progress I yhrn went weekly and now on 2 weekly

I'm still struggling but am making very slow progress. I had jelly legs yesterday !! But okay today and walked round the block. It catches me off guard the way my body is at present. I call it unreliable. Seems right gift in waves with seemingly no rhyme or reason. Not sure how long or how often you injecting . I'm still notrying sure of frequency but staying to what I've decided for a while to see. I hope your symptoms settle soon and you get the regime you need. It's a good idea to have your bloods checked to see if you on track with supplements. I was amazed that taking iron for the first time to raise ferriton levels only maintained rather than raised. So having a 4 month gap and getting bloods done again. I wish you well

[buster_uk in reply to Nackapan]

Hi Napapan. I have been injecting everyday since Saturday. Boy does it hurt when the fluid goes in. On the first injection I noticed my heart was racing after five mins.

Gp would not do b12 tests so hence self treating. My apitite as returned, its just all these exaggerated nerve pains.

Also my BP has g

Come down from 198/111 to 146/89

[Nackapan in reply to buster_uk]

If you read through some posts I can imagine others would say keep going at present . Sounds like a lot of repair needed. I'm of course not medical and you need to find what suits you. Take care

[Hanneke12 in reply to buster_uk]

PLease read this post: healthunlocked.com/pasoc/po....

And please make sure you warm up the ampoule of B12 to body temperature before injecting it. That will help with the pain

Also, if things don't improve it might be a good idea to look for an underlying reason for the B12 deficiency (you were tested deficient, right?).

[buster_uk in reply to Hanneke12]

Last test I have access to was 2014 b12 was at 108. Range 180~1130. My diet was rubbish since then only eating bread, cakes, chocolate and lots of other rubbish. Never took supplements never ate healthy. Due too the way I felt. So I guess the only way that 108 could have gone was further down. Must have been low for years. Then in 2016 I think I had an endoscopy where they said I had gastritis. My sister has pa also.

[Hanneke12 in reply to buster_uk]

So sorry to hear you got caught in a downward spiral, food & feeling wise... Hope you can find a doctor to get you tested for PA and get you some guidance, also for your stomach. Do mention that PA is in the family...!

And I hope that you'll feel better soon and find the self-love to eat better. You deserve it!!