Low platelet count: Hi, I haven't been... - Pernicious Anaemi...

Pernicious Anaemia Society

32,319 members23,535 posts

Low platelet count

Sick-and-Tired profile image
4 Replies

Hi,

I haven't been diagnosed with PA. I have hashimotos but Levothyroxine hasn't relieved the fatigue so I'm exploring what else could be doing on.

I have parietal cell antibodies, which i know can have an impact on b12 absorption (although my GP says these antibodies are meaningless). My b12 was around 330 so i started using a b12 oil and a folate supplement.

However, my main question is whether anyone knows whether the fact that my platelet count is always low is an indicator of anything?

It's not breathtakingly low, it's in the range that's below what it should be but doesn't cause a problem - always between 100 10*9/L and 130 10*9/L (range 150-450)

I found some blood test results from about 10 years ago and saw that was already a problem back then, and has been consistently below range every time I'm tested for the last 3 years.

While i know this isn't that low, and may mean absolutely nothing like the doctor says, I just wondered whether anyone would suggest it might be indicative of anything?

Thanks in advance!

Written by
Sick-and-Tired profile image
Sick-and-Tired
To view profiles and participate in discussions please or .
Read more about...
4 Replies
Annnon58 profile image
Annnon58

Hi sick and tired , it may be worth you joining the ITP support Association in Health Unlocked. . Idiopathic Thrombocytopenia group . I am a member ( it’s free ) as my husband has low platelets also PA , hope it helps you get some answers . They advised me to get his blood checked regularly and to look out for unexplained bruising or bleeding such as nose or gums . Good luck .

Sick-and-Tired profile image
Sick-and-Tired in reply to Annnon58

Thanks, I'll do that!

I really appreciate your help!

Sleepybunny profile image
Sleepybunny

Hi,

I have read that there may be a link between H Pylori infection and ITP.

H pylori infection

patient.info/health/dyspeps...

Have you ever been tetsed for H Pylori?

H Pylori and ITP

ncbi.nlm.nih.gov/pmc/articl...

ncbi.nlm.nih.gov/pmc/articl...

PAS (Pernicious Anaemia Society)

Based in Wales, UK.

pernicious-anaemia-society....

PAS tel no +44 (0)1656 769717 answerphone

B12 Deficiency Info website

b12deficiency.info/

B12 books I found useful

"What You Need to Know About Pernicious Anaemia and B12 Deficiency" by Martyn Hooper

Martyn Hooper is the chair of PAS (Pernicious Anaemia Society). Book is up to date with UK b12 guidelines.

"Living with Pernicious Anaemia and Vitamin B12 Deficiency" by Martyn Hooper

Has several case studies.

"Could it Be B12?: An Epidemic of Misdiagnoses" by Sally Pacholok and JJ. Stuart (USA authors)

Very comprehensive with lots of case studies. There is also a paediatric version of this book "Could It Be B12? Paediatric Edition: What Every Parent Needs to Know".

UK B12 documents

BSH Cobalamin and Folate Guidelines

b-s-h.org.uk/guidelines/gui...

Flowchart from BSH Cobalamin and Folate Guidelines

stichtingb12tekort.nl/weten...

BMJ B12 article

bmj.com/content/349/bmj.g5226

BNF

bnf.nice.org.uk/drug/hydrox...

NICE CKS

cks.nice.org.uk/anaemia-b12...

I am not medically trained.

Sick-and-Tired profile image
Sick-and-Tired in reply to Sleepybunny

Hi, thanks so much for all this useful information (sorry for my delay responding). I did buy an h. Pylori test from blue horizon a couple of years ago but it came back negative. I have heard you can get false negatives though so maybe I'll see if I can be tested again!

Thanks again for your advice.

Not what you're looking for?

You may also like...

Vit D

Does anyone have any idea what's so ever why I can not tolerate vit D supplements. I'm low in vit...

Hi Again - b12 and Peripheral Neuropathy (PN) - its wasnt the Alcohol?

Hi again lovely folks, and a big thanks to those "constant" heroes in this forum; who stick around...

Gluten and B12 deficiency

Is there a link between B12 deficiency and gluten sensitivity? My neuropathy has massively improved...

AUGH!

I have been battling for about 10 years with numerous health issues and was finally diagnosed about...

Bittersweet Bonds - Pernicious Anemia and the Doctor-Patient Dance

Not sure if this is any good but as I was hating my doctors it occurred to me how much I need them....