B12 loss of strength and properties d... - Pernicious Anaemi...

Pernicious Anaemia Society

32,672 members24,065 posts

B12 loss of strength and properties during hit summer

clairemallen123 profile image
13 Replies

Hi to everyone who has through their incredible knowledge helped me over the past year

I have gained so much knowledge from this site but never posted before

I am self injecting following advice from Dr Chandy very successfully for the last year but have a question about the storage of B12

Normally when injecting it stings and can be painful for a couple of hours after but my last batch of ampules feel like injecting water (no discomfort at all )

And they don’t seem to work

Is it possible the storage and transporting during the very hot summer we have had could have caused the b12 to lose its strength and properties

Thanks for your thoughts and consideration

Written by
clairemallen123 profile image
clairemallen123
To view profiles and participate in discussions please or .
Read more about...
13 Replies
clivealive profile image
clivealiveForum Support

Do the vials have an "expiry date" on them?

clairemallen123 profile image
clairemallen123 in reply toclivealive

Yes it 2019

wedgewood profile image
wedgewood

The ampoules should be kept in the dark and not stored above 25c . In the hot weather I put my ampoules in the top of the fridge till it got cooler But even if your ampoules were kept too warm for a week or two , the efficacy should not have been impaired by very much, if at all .

clairemallen123 profile image
clairemallen123 in reply towedgewood

Thanks so much

I have kept them in the fridge this summer but wondered if the supplier wasn’t so careful

I can’t work out why this batch doesn’t seem to have the same effect. Normally I have to inject very slowly because of the discomfort This batch seems to go in quickly and painlessly

But most importantly my injection doesn’t seem to address the signs /if symptoms I get when needing b12

I.e headache tiredness tinnitus and stiff neck

I take a multi vitamin and additional folate

Really appreciate your knowledge and time I have always felt a little guilty that I use the site for info so much and have never introduced myself

wedgewood profile image
wedgewood in reply toclairemallen123

PA is a complicated condition , and we are all very different . Please don’t get discouraged if you don’t progress as quickly as you hoped . Sometimes one does seem to go backwards . You must persist . Sometimes things get worse before they get better . Best wishes .

fbirder profile image
fbirder

Are you getting your B12 from Chandy or from a reputable supplier?

Chandy used to supply methylcobalamin without proper storage instructions. It needs to be kept refrigerated, unlike cyanocobalamin and hydroxocobalamin which should be stored below 25°C.

If it’s methylcobalamin, and the supplier hasn’t refrigerated it, then expiry dates are meaningless.

clairemallen123 profile image
clairemallen123 in reply tofbirder

Hi

It’s hydroxo and I get it from Intravita recommended by Dr Chandy

clairemallen123 profile image
clairemallen123

Hi fbirder

Just a thought if hydroxocobalamin should be stored below 25 it would be possible,given we have had many days above 25 this summer , it has not been stored appropriately by the supplier. Do you think ?

I have ordered from a different supplier Bodfield Germany to see if it makes a difference

Have you heard of them ? I hope they are reputable!

Thank you

fbirder profile image
fbirder

Intravita do not sell B12 for medical purposes, so they could do anything at all with the stuff. I wouldn’t touch them with a barge pole.

I would strongly recommend getting B12 from Germany.

clairemallen123 profile image
clairemallen123

Wow thanks for the advice

I’ll look forward to my delivery from the German company Bofeld

It was cheaper so hope they are reputable

Thanks so much

Foggyme profile image
FoggymeAdministrator in reply toclairemallen123

Hi clairemallen123. Bofeld is a reputable supplier of vitamin B12 injections.

Intravita offer cosmetic treatment and nutrition therapy and their charge for B12 is above what we usually expect to pay when buying B12 from Germany.

Because they are not medical suppliers they are not subject to the same stringent controls and there is no guarantee that the B12 has been stored appropriately (though I understand that they did (at one time) buy B12 from a reputable German supplier - but no idea what they do now). And it's more expensive because they add on an additional charge when selling it in the UK.

Going direct to a reputable supplier in Germany cuts out the middle man (Intravita) and also ensures that the product (B12) has been stored appropriately, with audited controls in place 😉.

👍

pitney profile image
pitney in reply toFoggyme

Thanks again for the info Foggy

clairemallen123 profile image
clairemallen123

Thank you so much

Your help has been incredible

I hope my delivery from bofeld comes quickly

I’m piling on patches and taking sublingual tablets by the pot full

Sadly with little effect

Not what you're looking for?

You may also like...

B12 and Hair Loss (Fixed) ?

I’ll do a short post. Any male notice reversal of Male Hair Loss (Baldness) with B12 injections....
Ryaan profile image

B12 injections and weight loss?

Has anyone else noticed rapid weight loss with self injecting B12 ? (I started with 1 a week for...
Ryaan profile image

long term side effects of b12?

Hi I'm wondering If anyone has knowledge of research that has been done for side effects of...
pslmt profile image

Hypertension and B12

Just wondering if others have had issues with B12-raised hypertension? I've suffered with...
Laverdista profile image

Swelling and B12

Hi All! Been self injecting hydroxo (preservative free from a compounding pharmacy) the past nine...
MarMcL profile image

Moderation team

See all
Gambit62 profile image
Gambit62Administrator
Foggyme profile image
FoggymeAdministrator
taka profile image
takaAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.