Still not feeling better... - Pernicious Anaemi...

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Still not feeling better...

3 Replies

Apologies for incoherent rambling as usual...

I had a level of 104 on my B12 in March of this year (2018) I had 4 or 5 injections (there was a problem with supplies) and I still feel terrible, whilst the numbness/tingling in my feet and hands has improved, I'm still weak, fatigued, brain fogged etc...

I had another blood test done last month (August) and everything was "fine", so there's to be no follow-up.

I do know if I do speak to a GP they'll blame everything on my T2 Diabetes, which they have been doing since that Dx 10 years ago, despite these symptoms being more-or-less lifelong (and I was hospitalised half a dozen times 35 years ago when I first became ill, and one hospitalisations was for diabetes testing, and that was not the problem - it was suggested that I had MS but was dismissed as I was "too young")

I was chatting online to someone who's a retired nurse and she got me to confirm the B12 level as 104, which I did, and she says I should have been referred on for tests as that's a critically low level, and given I've had low B12 levels 3 times in the past 5 years the doc really should have stepped up and done something...

I live in a rural area in Ireland with no transport so finding another GP is a problem, there are 4 GPs in the practice I'm registered with but they all follow the lead of the 'top dog', and if they say "it's her diabetes, cos she's crap at managing it" then it's my diabetes, cos I'm crap at managing it. that GP has said to my face in so many words that I'm fat, lazy and eat too much junk food. Soo won't get any help there...

Thoughts...?

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3 Replies

thanks, i'm speechless with rage myself!

Gambit62 profile image
Gambit62Administrator

If you are taking metformin then its quite likely that may have affected B12 absorption - think the patient info in the UK mention that 40% of people will become B12 deficient on metformin. May be worth talking to a pharmacist and see if they can feed back to your GP.

in reply to Gambit62

No, I'm not taking metformin.

I was and it was causing nausea, vomiting, diah...dier...the shits, wind etc...

GP wouldn't take me off it as I'd just have to "get used to it", I'd been on it 6 years at that point.

Finally did get another GP to change my prescription (after an argument) I'm now on Diamicron and Forxiga.

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