Hi everyone, I was diagnosed Nov 17 with b12 deff levels 169, had the first course of 6 booster injections,I had bad pins and needles in feet and hands, breathless, no energy, but injections helped and did feel a lot better.
But I then had folate and parietal cells checked, the folate was 300, and parietal was neg.
Was given 5mg of folate, and GI troubles began, I have suffered with reflux for 20 years and take 20mg of omeprazole daily,but a week into folate, I would feel sick every day, and bloated (I also suffer with IBS) so my stomach not liking folate, stopped the folate from the Dr, and bought methyl folate,same symptoms. I am due for another Injection in 3 weeks,and boy do I need it, I have been taking 1000mcg sublingual tabs every other day, but even these upset my stomach, Help!!! Please, anyone suffered same problems, advice please.(oh I admit I'm not a big veg fan do try tho). these symptoms are driving me nuts.
Thanks Tricia
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Tricia2747
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Have you had an Intrinsic Factor Antibody (IFA) test?
This can help to diagnose PA (Pernicious Anaemia) but test is not always reliable and it is still possible to have PA even if IFA test has a negative or normal range result.
In UK, test for parietal cell antibodies is no longer recommended as a test for PA. I have read articles that suggest a small percentage of people with PA will test negative on parietal cell antibodies test.
Some people on the forum diagnosed with high stomach acid have then discovered that their problems were due to low stomach acid. The symptoms of both are similar.
Have you had tests for ferritin and full blood count (known as Complete Blood Count in USA) as well as folate and B12? Info in links below may be UK specific.
I must also add,that 5 years ago I. Was diagnosed with lung cancer in my right lower lung stage 1. they took the lung away, lymph nodes clear,I have just been discharged from Papworth,as all clear. But!!! Got to say that since then I have not been right could this also have contributed towards b12 deficiency ??
You have had a great reply from Sleepybunny . But I was also going to ask if you had had an Intrinsic Factor test . It’s very unreliable , but I was lucky enough to be diagnosed with PA. with it . The sublingual B12 may not benefit you at all if you have PA , as mostly PA patients only benefit from injections .Omeprazole will have been robbing you of B12 by neutralising your stomach acid which is needed to absorb B12 in your food.
.A gastroenterologist told me that PA patients had no or low stomach acid ( due to antibodies that attack the pareital cells which produce hydrochloric acid and the Intrinsic Factor ). This upsets the stomach flora , causing bloating , pain and nausea . To help reset the balance I took a probiotic called Symprove , which has been specially developed for IBS . It was amazing ( but expensive ) I now make my own probiotic in the form of raw, organic sauerkraut ( I use red cabbage with chopped onion - it’s tasty and nutritious ) This does the trick .
As I can’t get more than 1injection of B12 every 3months from the NHS , I now self-inject to keep symptoms at bay . I hope you get a solution to your problem . Best wishes .
B12 HIGHer than ...RANGES 200-1100........Dr says no harm as of 2/15 .......i am so tired since last yr 2017........I stopped drinking greenjuice (aloe clr juice fennel celery cuk coconut water) Dr advised. 2/19 I started orange, carrot (repair cells) , cuk (flush system) water and sometimes a qrt cup fresh pineapples. I have some energy days, and take a walk on those days....taichi and stretching at home and taichi in a class as well now 1 day week .......drinking so much water each day ;).....
I eat s so healthy.......will reach out to Dr by 3/5.......ACED ALL BLOOD WORK ....LET ME KNOW AND PEACE AND LOVE......
Hi, no not had intrinsic factors tested,did think myself about H pylorie ,someone with gastric problems suggested a teaspoon of vinegar in water, could help.but I have to say until I had B12 injections,stomach problems have gotten worse.and tingly feet and fingers no better.My Age 70 a factor too. I have also discovered B12 plus loads of other vitamins patches,anyone tried them ??
It takes time for B12 to do its work , especially if you have been deficient for a long time .Also one doesn’t always recover 100%. In old age one produces less stomach acid , and you have been taking Omeprazole , which would have entirely demolished yours .
I have tried B12 patches , sub-lingual lozenges , nose sprays , to no effect . Only injections help me . You must also make sure that you get adequate folate /folic acid ( vitamin B9) . It works together with B12.
Thanks for your reply. Yes was prescribed folic acid,by the Dr, 5mg,daily, but after a week I started feeling bloated, stomach pains, and feeling sick all day,someone on the pa site,suggested methyl folate not so aggressive, and with my drs per mission, I bought some, but!! 2 days taking them,the same thing happened, I have purchased patches for b12, as sublingual tablets didn't help.can you get folic acid patches, or injections ??
I am so fed up with feeling like this, that I feel like stopping everything, my next b12 injection is a week Friday,its with a nurse practioner,so will have a chat with her. My main worry is the tingling in my feet and fingers, I understand the damage can be irreparable, I started with these symptoms last march,2017, but feeling preety rubbish since my cancer op 5 years ago.I just don't know where to go or do next,
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