Yesterday my symptoms moved from 2/3 weeks of feeling really cold to a sensation that I had put deep heat all over my arms. It’s been continuous for the last 24 hours. My palpatations are still there but I think I’ve just got more used to them. I think the Amitriplyne that my GP put me on a week ago has helped to calm what is probably anxiety and has stopped the pain in my head and neck. I do feel a constant trembling all over like a rushing feeling which is horrible and still stopping me sleeping as well as light headed ness. I know the Amytripline is not causing the symptoms as I was on it before Christmas for 2 months
On the plus I don’t feel fatigued and feel overly switched on but just tired from little sleep for over a week. Having read through lots of past posts, I am seeing my Gp and taking my partner on Monday to ask for every other day injections until my neurological symptoms stop. If the answer is no then I will inject myself.
Taking on board the great advice from my last 2 posts, I am trying to up my potassium intake through diet, taking methol folate supplements and magnesium and awaiting my thyroid tests which will hopefully be back tomorrow. I am going to try a sublingual of Methylcobalamin when it arrives today to see if it eases symptoms.
I have 2 questions that maybe someone could help me with.....
With regards to neurological symptoms and continuation of injections, it seems that the Amytripline helps the pain and reduces symptoms, which I think will make it hard to see how symptoms are progressing once I start injecting again. My GP encourages me to increase the dosage of Amitrplyne when things get worse as I was on it for 2 months when my symptoms started. I wondered if anyone has any thoughts or experience with this?
Secondly, lots of posts talk of symptoms worsening before they get better which I completely get. It’s very early days I know and healing is a long process but it’s so hard to tell if worsening symptoms like the new deep heat feeling, heart palpations and trembling are because things are starting to heal or actually a deteriation in nerves. I can relate to everything seeming so much louder but the last couple of days I now also seem to jump out of my skin and find people talking to me just too loud. My thoughts are it’s better to have the injections and try the sublingual then sit and wait which is what I have done for nearly 2 weeks, especially given the urgency people talk about?
When I spoke to my GP last Friday she said that ‘ too much of a good thing can make you feel worse’. From what all posts say I know that is not true. If she says no even after we talk about the guidelines etc..... I’m just not well enough for a battle!
Any thoughts would be helpful!