Hi helpful forum contributors- I stopped all meds inc SI 4 months ago after a Dr told me I’m not deficient & she wouldn’t consider me so if my level was 20 - she didn’t specify which level but...
I got a medichecks active B12 done then - 256, just got the results back having taken nothing for 4 months and it’s 118. Of course it goes without saying - I feel like death, but hey a small sacrifice to make a point..
My question for you now is .. how ‘bad’ is 118? Of course the result says this is in normal range which we all know is meaningless - & I repeat I feel truly awful. I do wonder why some GPs treat patients who can speak - they’d have been far better doing Vet school if they’re not going to bother listening to what the people they’re treating say!
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Shattered-FedUp
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This was a very long journey for me. I never developed issues with red blood cells so the low B12 was always discounted until things became very severe. Understanding what may have caused the deficiency might help answer the GPs concern.
For example, ongoing testing may be suitable if the cause is curable such as H Pylori. Ongoing testing is meaningless if a curable form has either not been cured or not confirmed.
Too many GPs don’t understand this. If you read some of the other posts I know there are some great links to articles that might help, even here don’t be surprised if they choose to ignore the literature.
It took me such long to be believed, that I self medicated.
The ultimate solution was change the GP that you see in the surgery, sometimes we have a gut instinct for the reliable GP over others.
I saw two neurologists, one haematologist, one cardiologist and one gastroenterologist before my care plan was properly documented. They all (except the first neurologist) agreed that the answer was in my medical records all along but never acted upon by my GP.
I have injections every 2 months and self medicate with 2 x 1000 microgrammes of methylcobalamin (sublingual) each morning with multivitamins and minerals. On the odd occasion I take an extra sublingual at night, if I’m run down.
You need to provide the ranges for the test results.
Are you sure this was an Active B12 test? If it is, and the test has the normal ranges, then 118 isn't 'just' in the normal range. It's high in the normal range.
And people always say that the Active test is a lot more accurate than the normal blood test.
Yes , 118 B12 serum test is LOW . I was on my knees when mine was 150 . It’s hard to believe that 118 is not low on any of the scales . Perhaps you can change your surgery ?
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