Hello, I am new to this and was looking for some advice about what I should do next in terms of the issues I’m having with the symptoms of a b12 deficiency.
I went to the doctors in March this year with joint pains in my legs, pins and needles, a numb right hand and dizziness. I got bloods done which came back with a b12 reading of 159 and no anemia. I got my loading dose (6 injections over 2 weeks) and by the end of it I noticed an improvement. The result of my intrinsic factor came back negative and was therefore told I needed no further treatment and sent on my way. A few weeks later i felt I’d gone back to how I was before and went back to the doctor who told me there must be something seriously wrong with me and they suspected MS and I was referred to neurology. After a lot of anxiety and panicking I eventually went private due to the long waiting times. I saw an excellent neurologist who totally understood the effects of b12 and was told this was the cause of all my problems. I had an MRI scan to check for other more serious conditions which came back clear and he was happy to start me on 2 monthly injections.
I got a blood test to check my b12 levels and was given the injection. Over the next few days I noticed a slight improvement again but this soon subsided. I then got the blood results back which showed a b12 level of over 500 before I’d even got the injection!!! And now my neurologist thinks there is something else involved.
Does anyone have any advice as to whether I could still be suffering from b12 deficiency or if it’s probably something else?
Also do you think it would be worth starting to self inject more regularly to see if it helps?
My current symptoms are:
Pins and needles
Vision disturbances (but not blurry)
Feeling of limping when walking
Brian fog/confusion/memory problems
I have quite a bad gluten intolerance but not confirmed as coeliac.
I am also aware that some of these symptoms could be caused by the anxiety I have in relation to this.
Any advice would be greatly appreciated, I feel like I’m going insane!