my main question is, when I (and others here) are taking so much to help, why do we still feel ill? Is that a naive question?
Yesterday I fainted just as I was going through airport security. Mortifying... on the ground for half an hour. Paramedic was great (and lovely doctor in the queue spent 1.5 hours with me). My blood sugar was 4.9 which was a bit low. BP was high (150/100, gradually reduced to 135/85 after 30 mins - usual is 120/75 but it has risen since I started SI).
I was also foggy i guess - I had left passport at checkin and later left my PC on the plane...
I'm SI once a week (twice a week right now because I had a tooth extracted 10 days ago and had a large abscess). I take folate, K, Mg, Ca and Vit D daily. So, why should I feel so awful? I'm slightly hyper (overactive) thyroid but don't know how much (verbal info from GP). Also quite tearful. 24 hours later I keep thinking the chair is moving around while I'm sitting down. But I've managed to navigate a new city and give a presentation, so have staggered through my obligations...
I have a neurologist appt in Jan (NHS waiting lists..) but haven't seen a haematologist at all. I was low on D, Ferritin, Folate and white cells in Jan, but Folate and D back to good levels after the supplements. I have had neuro symptoms for 10 years which are still improving after 9 months SI.
GP is kind but doesn't have much to say. If I ask for tests he will give them I think, within reason, but I am not sure what to ask. Sorry this is so long but in a way the general q is - what more does it take to keep us functioning?
Sorry to ramble....feel better for writing this.