I got a phone call yesterday from one of the haematologists dealing with me: She said that she'd had some results back from the lab: my homocysteine level was 'normal' and after talking to a B12 expert there, has decided that my MMA levels could be raised because of age (I'm 59), and could even be considered by some as within range, because it's less than 400nmol/L . They are happy that B12 levels are normal. I asked her why my hair falls out and my gums bleed (the 2 simplest and most indisputable of my symptoms) and she said that could be folate. GP last year said that my folate level was a bit on the low side and I had 3 months folate and ferritin to address any issues there: when re-tested both were fine. So not folate then.
I told her that by the time my latest certificate runs out, I will have been off work for a whole academic year and time is slipping away without any real answers emerging and no effective treatment for this condition, whatever it is. There is no time left to explore possibilities one at a time (especially those that have previously been ruled out). It's now been over 2 1/2 yrs since I first went to GP.
She now wants to test my MMA the day before my B12 injection, then again the day after. I haven't booked the injection yet or spoken to the haematology receptionist and hoping to tie appointments in with MRI brain scan and electric nerve testing which are next week too.
I am beginning to panic again about all of this. I no longer have anything to ask for, seem to have had my Functional B12 deficiency diagnosis ruled out, don't think I'm the only one unsure of where this is all heading.
I can see myself having to go back to work in September with this whole matter completely unresolved and with B12 injections refused. Still ill though, still unemployably ill.
[Chancery , read this, okay? I know you're getting MMA and homocysteine tests done soon.]