Help: I was diagnosed earlier in the... - Pernicious Anaemi...

Pernicious Anaemia Society

32,319 members23,535 posts

Help

Duranie profile image
4 Replies

I was diagnosed earlier in the year , was told my b12 was very low and had 6 booster injection , a month ago I had a blood test to see what happens next , now been told my b12 is normal and it's dietary ( had the blood test done during a set of 3 booster injections) got a phone consultation in 2 weeks and need some advice , was this normal practice and also what questions to ask ? Thanks guys

Written by
Duranie profile image
Duranie
To view profiles and participate in discussions please or .
Read more about...
4 Replies
clivealive profile image
clivealiveForum Support

Hi Duranie the main thing to ask is how are you feeling now that your B12 level is "back to normal"?

If the cause of the original deficiency was "dietary" can you improve your daily intake of Vitamin B12 rich foods such as red meats, fish, eggs, poultry and dairy produce?

Also do you know what your Folate level is? To maintain that you need to eat leafy green vegetables, sprouts, broccoli, spinach, beans, peas etc.

I'm not a medically trained person but there are others on here who will be able to give you good advice

Gambit62 profile image
Gambit62Administrator

please see response on this post

healthunlocked.com/pasoc/po...

Duranie profile image
Duranie in reply to Gambit62

Thanks for the help . The doctor has said that my b12 levels are 'above 'normal and has ruled out pa completely and is now going to search to see what else could cause the symptoms. I have an appointment on Wed so we shall see .

Gambit62 profile image
Gambit62Administrator in reply to Duranie

getting the impression that your GP, like so many others, doesn't really understand how B12 works and how to really interpret the results of serum test after loading shots.

may be worth suggesting that he looks at the area on the PAS website aimed at medical professionals

pernicious-anaemia-society....

there is also this recent article from bloodjournal.

bloodjournal.org/content/bl...

Not what you're looking for?

You may also like...

Vit D

Does anyone have any idea what's so ever why I can not tolerate vit D supplements. I'm low in vit...

Hi Again - b12 and Peripheral Neuropathy (PN) - its wasnt the Alcohol?

Hi again lovely folks, and a big thanks to those "constant" heroes in this forum; who stick around...

Gluten and B12 deficiency

Is there a link between B12 deficiency and gluten sensitivity? My neuropathy has massively improved...

AUGH!

I have been battling for about 10 years with numerous health issues and was finally diagnosed about...

Me again

I will be self injecting. I was told to get my supplies from medisave but it won't let me order...