Hi there, I am writing this having just returned from an awful experience at haematologist appt. Having been diagnosed with PA about 2 and a half years ago, after numerous visits to my GP I was having b12 injections 3 weekly (fortunate I know). However, my gp retired and a new gp has requested I see a haematologist to allow me to continue with 3 weekly injections. The new gp told me she doesn't believe in b12 injections. The haematologist wouldn't listen to anything I had to say. He said that needing injections more frequently than the guidelines of every 12 weeks was 'all in my head' and this was merely a placebo effect. When I told him about the improvement in my migraines, memory, tiredness, ibs etc he was extremely dismissive. He said that ibs wasn't a symptom of PA. He said too much b12 was not good to have, I explained that it was my understanding you couldn't overdose on b12 as the body excretes any surplus, again he just looked at me bordering disgust and explained that he was the consultant and he was giving me his advise!!
I left the hospital in floods of tears feeling totally exasperated at the lack of understanding and indeed knowledge of this so called specialist. On the back of this, he is going to write to my gp to confirm I should have 12 weekly injections, when I already know this doesn't work for me.
Any advise would be appreciated, sorry for the long post, just don't know really where to go from here.