New to the board - b12 deficiency - Pernicious Anaemi...

Pernicious Anaemia Society

32,623 members23,984 posts

New to the board - b12 deficiency

Jim-db profile image
5 Replies

I have been fatigued for almost 30 years. I always had a rational reason, usually lack of sleep. I learned a few weeks ago that my grandfather had pernicious anemia. I had my first test for b12 and it measured at 146. explains a lot. What additional tests should I ask for? My CBC panel was normal.

Happy that this board exists.

Written by
Jim-db profile image
Jim-db
To view profiles and participate in discussions please or .
Read more about...
5 Replies
PAS-admin profile image
PAS-adminPartner

Have a look at our Pinned Posts on the Home page. lots of info in there.

As for B12def, that is clear so no further tests needed there, just immediate treatment (I hope you're getting that?) To test for pernicious anaemia: Anti-intrinsic Factor Antibody and Parietal Cell Antibodies have to be tested. (see also our general info in pinned posts)

Additional iron (ferritin) and folate should be tested (but might have been already?)

Jim-db profile image
Jim-db in reply toPAS-admin

The test results came in last night. Back to the doctor this afternoon. Thank you for your quick reply!

clivealive profile image
clivealiveForum Support in reply toJim-db

I wish you well

Jim-db profile image
Jim-db

Well, I was slightly mistaken. Waited for a call. Didn't get one so I called. Asked what I should do about my low b12. Was told they were waiting for my D result. I called the patient advocate line. I explained that I wasn't sure what normal response should be, but I expected a call from the doctor asking me to come in to figure out a plan to address my low b12. I then got a call from the doctors nurse 2 hours later to tell me that they were running additional tests on my blood and would call me next week. The doctor was aware that my 12 was really low. Oh and that my vitamin D was low, 16.8.

Was my expectation of being called in to discuss an initial plan of action wrong?

PAS-admin profile image
PAS-adminPartner in reply toJim-db

No it wasn't and you should be on injections already. There is no point in waiting for other resultst. I don't know what they're waiting for, maybe they test antibodies, but there is absolutely no reason whatsoever to wait.

Not what you're looking for?

You may also like...

New diagnosis B12 deficiency

I am new to this group despite following Thyroid UK comunity for a year or two now. I have been...
Tanyamm32 profile image

B12 deficiency

Hi I wonder if I am on the correct site. I was diagnosed with b12 deficiency in June and I've...
Alfabeta profile image

B12 deficiency

Hi I am a vegetarian verging on vegan and was put on omaprezole by my various doctors to counter...
Alfabeta profile image

B12 Deficiency

Hi, I'm new to this forum- just wanted to clarify a couple of things that are confusing me. I had...
kate894 profile image

B12 deficiency

Hi I've been advised to turn to this forum as I've reached desperation for answers and help! My mum...
Soph46 profile image

Moderation team

See all
Gambit62 profile image
Gambit62Administrator
Foggyme profile image
FoggymeAdministrator
taka profile image
takaAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.