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Pernicious Anaemia Society
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Advice please

I was diagnosed with PA in 2012 after suffering the very long list of symptoms some of which were neurological. I have eventually, after much battling, managed to have my b12 jabs every 7 weeks. over the last couple of months i first had Temperomandibular joint disorder which eventually cleared up and a week ago I have had Trigeminal neuralgia which came on before my jab was due last Friday. both extremely painfull and the latter just starting to improve (as a result of having the B12 jab Friday??).

My question is, is there a definite link between PA and TMJ and Trigeminal neuralgia?

if so, is there any documentation i can show my GP please? Any advice gratefully received!

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Hi Laura1961 I'm not medically trained but would think that anything to do with the nervous system may be impacted by B12/P.A. treatment

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HI clivealive.. am not sure of the cause...possibly stress. Thanks

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nhs.uk/conditions/temporoma...

would appear that TMD can have a number of causes - not just trauma.

I'd never heard of it - but can certainly relate to it in the past - particularly the joint clicking and the problems opening jaw- though can't say I've experienced them recently, or even really remember them being a particular factor in the few years before I was diagnosed.

Could be related to PA through neurological effects or through anxiety (or osteoarthritis - though doubt that would be one that would clear particularly quickly).

TN is mentioned from time to time as a symptom that people have experienced whilst B12 deficient.

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Thanks Gambit..it may well be due to stress as i have had a lot lately with my step father being very ill and passing away.

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Hi Eaoz...i have no idea of the cause of either. The only thing is that i have had a lot of stress with my step father being ill and passing away...but no trauma. Thanks

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Many, many years ago I had a clicking jaw. Surprisingly, a GP referred me and a specialist told me very specifically how to exercise my jaw. It worked.

Not so many years ago, I suffered from something like TN. Extreme shocks across my face - mostly one-sided. Extreme intolerance of cold - even a slightly cool draught could cause pain.

This painful issue slowly resolved - when I took oral B12. I cannot know if it would have improved anyway. For the first year or so of improvement, each time I felt the slightest tenderness or twinge, I took some more B12 (as well as every day). Now, I don't take B12 very often, and don't have the pain - except very occasionally. Even then, it is diminished in intensity.

I'd strongly support the possibility of B12 being deeply involved, but find it very difficult to have any certainty for myself.

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Thanks helvella..I shall increase the B12 spray.

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