Advice please: I was diagnosed with PA... - Pernicious Anaemi...

Pernicious Anaemia Society

32,623 members23,983 posts

Advice please

Laura1961 profile image
7 Replies

I was diagnosed with PA in 2012 after suffering the very long list of symptoms some of which were neurological. I have eventually, after much battling, managed to have my b12 jabs every 7 weeks. over the last couple of months i first had Temperomandibular joint disorder which eventually cleared up and a week ago I have had Trigeminal neuralgia which came on before my jab was due last Friday. both extremely painfull and the latter just starting to improve (as a result of having the B12 jab Friday??).

My question is, is there a definite link between PA and TMJ and Trigeminal neuralgia?

if so, is there any documentation i can show my GP please? Any advice gratefully received!

Written by
Laura1961 profile image
Laura1961
To view profiles and participate in discussions please or .
Read more about...
7 Replies
clivealive profile image
clivealiveForum Support

Hi Laura1961 I'm not medically trained but would think that anything to do with the nervous system may be impacted by B12/P.A. treatment

Laura1961 profile image
Laura1961 in reply toclivealive

HI clivealive.. am not sure of the cause...possibly stress. Thanks

Gambit62 profile image
Gambit62Administrator

nhs.uk/conditions/temporoma...

would appear that TMD can have a number of causes - not just trauma.

I'd never heard of it - but can certainly relate to it in the past - particularly the joint clicking and the problems opening jaw- though can't say I've experienced them recently, or even really remember them being a particular factor in the few years before I was diagnosed.

Could be related to PA through neurological effects or through anxiety (or osteoarthritis - though doubt that would be one that would clear particularly quickly).

TN is mentioned from time to time as a symptom that people have experienced whilst B12 deficient.

Laura1961 profile image
Laura1961 in reply toGambit62

Thanks Gambit..it may well be due to stress as i have had a lot lately with my step father being very ill and passing away.

helvella profile image
helvella

Many, many years ago I had a clicking jaw. Surprisingly, a GP referred me and a specialist told me very specifically how to exercise my jaw. It worked.

Not so many years ago, I suffered from something like TN. Extreme shocks across my face - mostly one-sided. Extreme intolerance of cold - even a slightly cool draught could cause pain.

This painful issue slowly resolved - when I took oral B12. I cannot know if it would have improved anyway. For the first year or so of improvement, each time I felt the slightest tenderness or twinge, I took some more B12 (as well as every day). Now, I don't take B12 very often, and don't have the pain - except very occasionally. Even then, it is diminished in intensity.

I'd strongly support the possibility of B12 being deeply involved, but find it very difficult to have any certainty for myself.

Laura1961 profile image
Laura1961 in reply tohelvella

Thanks helvella..I shall increase the B12 spray.

Laura1961 profile image
Laura1961

Hi Eaoz...i have no idea of the cause of either. The only thing is that i have had a lot of stress with my step father being ill and passing away...but no trauma. Thanks

Not what you're looking for?

You may also like...

B12 and Trigeminal Neuralgia

My story follows the usual pattern. Two years, 7 GP’s, 5 consultants, a dozen or more blood...
Cankita profile image

PA? Advice please

Hi, after some advice please. I’m still slightly shocked after visiting the doctor yesterday. I’ve...
Chalky1064 profile image

PA and alcohol

After having 2 glasses of wine at the weekend I feel I need a b12 jab but I only had one on Friday....
Kapat1 profile image

B12 injection advice please

I have been receiving injections every 3 months or so for last 3 years.When diagnosed ( by myself...
alanduke profile image

Advice please

Hi I've not posted before on this site although I've 'lurked'for a while. I am 60 yrs old. In...
Ccupcakes profile image

Moderation team

See all
Gambit62 profile image
Gambit62Administrator
Foggyme profile image
FoggymeAdministrator
taka profile image
takaAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.