Can anyone please help?
So I've just come back from my GP appointment regarding b12 deficiency, and even though I highlighted my PA diagnosis in 2001, and the fact I was taken off b12 injections and monitored using the b12 serum test in 2005, he still thinks that this was a sensible cause of action as my b12 levels were coming in normal!!
I explained the pattern in my health deteriorating after the b12 injections were stopped, and how I've been diagnosed with CFS & Fibromyalgia from starting with a chronic illness in 2011.
The GP still has 100% faith that the b12 serum test is accurate and therefore I cannot be b12 deficient!!
It's so infuriating that gps are soooo closed minded about the accuracy of the b12 serum test!! It doesnt help that my b12 serum level is 500 now.
I currently have unexplained inflammation and severe symptoms that are supposedly down to my CFS/Fibro condition, which leads me to have a very poor quality of life. But I am very concerned that this has been misdiagnosed, and is actually due to my PA diagnosis in 2001 (which has been ignored) and could be causing irreversible damage!!
Surely I thought they would take note of my PA diagnosis in 2001!!!
I have paid privately for additional tests (MMA, Active b12, Homocysteine) and waiting for these results, but in the meantime I have booked an appointmnet with another GP to see if they will agree to start b12 injections again
Does anyone know where I can source information that proves b12 injections should never be stopped with a diagnosis of Pernicious Anaemia? I want to print off as much info as possible and take it with me to my GP appointment on Thursday.
many thanks for all your help