Oh help! Here I am again!
The comedy of errors continues apace...
As per previous posts, I thought I was staring to convert my GP who went off to 'find-out' if I could have every other day B12 injections (due to ongoing B12 deficiency / neuro symptoms / B12 above 2000). He was going to speak to a gastro and neuro and ring me the next day. Two weeks on and no phone call!
Started self injecting.
Finally managed to get him to call me back after numerous calls to the surgery and, to cut a long story short, he said, 'Oh, I must have forgot!!!' He went off to make a call and finally got back to me this morning, having spoke to an on call neuro registrar.
I've no idea what he told him but I suspect that whatever it was was an incomplete picture of what's been going on (inadequate treatment for four years). The outcome is that the neuro is 'reluctant' to advise every other day injections and wants, instead, to do MMA and Homosysteine levels (so they'll be ready for end of June appointment.
So, given that I've already been having B12 (last injected 1mg Methylcobalamin 2 days ago), I just want to check my understating of what I've been reading here. Am I right to think that these results will be skewed because of B12 injections?
And more Important, will the MMA and Homosysteine levels still be high if I have a functional B12 deficiency, despite treatment?
And is there any point in stopping self injections (test will be end of this week) - think I suspect what the answer to that will be!
What would you do, carry on injecting, or stop?
I'm thinking now that, with potentially skewed test results, all I'm going to end up with is another string of reasons why I can't have more B12!
Might have been nice if these tests were done before B12!
Excuse me, but this is so frustrating. Battling with medics is like trying to nail jelly to the wall or knit with spaghetti, and it's wearing me out!
Most days I rail at the astonishing level of incompetence...but then I stop and wonder... Some days I think I might just be going MAD!
To all of you who've been here for a while...how on earth do you manage to keep your cool!
There, that's me done. Thanks for listening. Again. Grrrr...👹