barbieboo : Hi !have been feeling... - Pernicious Anaemi...

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barbieboo

03081963 profile image
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Hi !have been feeling beyond wretched for so long !have totally forgotten what it's like to feel normal doctor useless .....private endo appointments etc .....have spent a fortune on alternative treatments to no avail .....was diagnosed with PA about 9 years ago and just been having B12 every 3 months .......out of desperation I was online and discovered Health unlocked and the PA society ....read everything and was gobsmacked ....what a lightbulb moment ...I now realise along with many others my levels despite being ''normal' are not normal for me .does this resonate with anyone ?and am really keen to hear from those self injecting at home and if my doctor will not give me B12 jabs I need where can these be obtained ?Would be immensely grateful .

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03081963
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jillc39 profile image
jillc39

oh hang in there - I am sure you will get lots of advice from people who self-inject with great success.  but first have a try at getting over to your gp that you need more frequent b12 injections. 

fbirder profile image
fbirder

I get my B12 from versandapo.de versandapo.de/article/searc...

I get my syringes, needles and wipes from amazon.uk:

Green needles to draw the solution up into the syringe - amazon.co.uk/Sterile-Single...

Blue needles for the actual injection - amazon.co.uk/Sterile-Single...

2ml syringes - amazon.co.uk/2ML-PLASTIPAK-...

03081963 profile image
03081963 in reply to fbirder

Million thanks for your reply !So very much appreciated !!😀

B12Pleeeaaase profile image
B12Pleeeaaase in reply to fbirder

It's outrageous that you have to get your own B12 injections but am going to have to resort to the same. This feels like some sort of April fools. I can't take it in. I was put on antidepressants 20 years ago then got manic so was put on lithium and diagnosed bipolar. I have now had to withdraw off lithium due to developing parkinsons symptoms. I have been told there is a possibility I was misdiagnosed. I was depressed but the seroxat they gave me can cause mania. How can they give me these tablets for symptoms but not try me on B12 which as far as I can tell is harmless but could make me function like a 'normal' human being.

wedgewood profile image
wedgewood in reply to B12Pleeeaaase

Peope are ofter misdiagnosed with---Autism, ADHD, Bipolar, Alzheimer's, Depression, Dementia, Fibromyalgia, CFS, Psychosis, Post-natal depression, Anaemia, Multiple sclerosis, Schizophrenia Parkinson's All they need are cheap B12 injections! It is truly an OUTRAGE. Don't delay . Self inject! 

B12Pleeeaaase profile image
B12Pleeeaaase in reply to wedgewood

Thankyou for your help. Is there any danger when injecting yourself

wedgewood profile image
wedgewood in reply to B12Pleeeaaase

No, as long as you are sensible. Always inject where the environment is clean. Wash your hands thoroughly . I always use a sterile wipe on the area I want to use for the injection (I inject in my thighs--the outer muddle third)  I use one long needle to extract from the ampoule (If you touch the glass with the needle, it becomes blunt, which could make the injection a bit painful)  New needle for injection. Flick the syringe to get rid of any air. Depress plunger untill a drop of the liquid appears on end of needle. (I use a needle 1inch long and 25 gauge width. It goes into the skin like a warm knife into butter! No discomfort at all! )  Depress plunger slowly. Extract needle ,and swab area. Some people put a plaster over the area. I only do this if I bleed a bit .mostly I don't.  I doesn't take more than 5 minutes. After 18 months it is now a simple routine. I don't deny that I was horribly nervous the first time!  But it has changed my life-- No more exhaustion dizziness , confusion, irritability, and the numbness has gone from my feet(just left now with burning sensation,with which I can cope)  I just could not manage on one injection every 3 months---Impossible! I inject weekly,and I have got my life back! Hope that you do too! All the best 

B12Pleeeaaase profile image
B12Pleeeaaase in reply to wedgewood

I feel like I haven't got the strength to deal with it and forgot where it's best to get the injections from. The thought of doing it terrifies me.

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