Hi
I find it really difficult to find my way around this site, probably because I need a jab! I saw a link to an app for Dr's to use (unless I was dreaming!). My doctor has said she would like to have a look at this but for the life of me I cannot find it again. Can anyone help with a link? Also what other information should I give her as she feels bound by the NICE guidelines for giving injections every 3 months, but is keen to have more information. Many thanks from a brain dead mum x
Pretty sure I remember something about a downloadable Ap and thought it was on the B12d.org web site but closest I can find is the downloadable protocolb12d.org/protocoltreatment
There is also the on-line calculator
b12d.org/admin/healthcheck/...
Your GP might find the pages on the PAS website geared to health professionals useful
pernicious-anaemia-society....
If you neuro symptoms then the NICE protocols are actually maintenance every 2 months in line with the BCSH guidelines so may be worth pointing that out to GP, though won't help if you need more frequently than that
Hi,
Have you been diagnosed with PA (Pernicious Anaemia)? Or is there another cause to your B12 deficiency?
Think the app is mentioned in this blog post. I'm sure the PAS could give you details.
The PAS website has a section for medical professionals.
pernicious-anaemia-society....
01656 769 717
The PAS are helpful and sympathetic to talk to. You do not need to be a member to ring them.
I gave my Gps copies of....
1)ukneqas-haematinics.org.uk/...
2)bmj.com/content/349/bmj.g5226
3)BCSH Cobalamin and Folate Guidelines
Easy to find if you google it. these came outy in 2014. I was told NHS should be following them.
4) Martyn Hooper's latest book (Martyn is the chair of the PAS).
"What You Should Know About Pernicious Anaemia and Vitamin B12 Deficiency"
"she feels bound by the NICE guidelines for giving injections every 3 months"
Have you got any neurological symptoms? See following lists.
pernicious-anaemia-society....
Symptoms Checklist
b12deficiency.info/signs-an...
If you have B12 deficiency with neurological symptoms then the recommended treatment in the BNF (British national formulary) Chapter 9 section 1.2 and BCSH Cobalamin Guidelines is more intensive than one injection every three months. See Management section in link below for treatment info similar to that in BNF.
patient.info/doctor/pernici...
I found the book "Could it Be B12" by Sally Pacholok and JJ. Stuart very interesting to read. its a very comprehensive book about B12 deficiency with lots of case studies.
If you have time it might help to look at other people's threads as some have some detailed posts with lots of useful info.
Another useful website
Hi, yes I have been diagnosed with pa and have joined pas. Thanks so much for the info. I had found it before, just think I'm having one of those moments. Ild been looking around the site for a couple of hours and was getting frustrated as I couldn't find anything and nothing was making sense again.
I've now bought the kindle book you suggested and will print off the other info.
Thanks sleepy bunny just the help I needed 😉
Maybe this was the one you were thinking of
eCPD is the app for drs im sure, it gives hcp points/credits if they do certain tests if i remember rightly being told. So not just about b12.
If you have trouble finding it go to the pas website scroll down in the news section it is listed there about november timeish.
Update on Visit to Doctor
Where can I buy B12 injections
Where to buy B12 in USA?
