Hi there, I will try and keep this concise! I am 35 years old and for the last 18 months or so my health has been deteriorating. I have always been pretty active and healthy, I am vegan, so take a lot of care over what I eat, don't smoke, rarely drink and generally take care of myself.
Last year following an aborted attempt to donate my eggs (long story, but tl:dr - the fertility drugs caused sudden, dramatic ill effects) my system was upset - my periods had always been heavy, but became unmanageably so. I was put on the pill but it led to anaemia and vitamin D deficiency - and *I believe* pernicious anaemia.
There is a lot of information which suggests that the issue with B12 deficiencies showing in blood tests is a big problem for vegans. My B12 keeps coming back as 'normal' (last blood test, in June) my level was 892ng/L (against a 'normal' range of 191-663). My folate is on the high side too (13.4 ug/L against a normal of 4.6-18.7 ug/L).
I started taking prescribed iron, vitamin D which helped. I then started an over the counter oral B12 - and my health improved pretty much overnight! It made a difference for several months before it started to deteriorate again. Now, no amount of oral/sublingual supplementation seems to make a difference.
My main symptom is exhaustion - I walk a lot and over the last few months, exercise which was easy, has become harder. Recently I have been going to bed earlier and earlier as I am just so tired by the evening. My quality of life is deteriorating as I am just not able to do all that I want to.
I visited my doctor today who told me to take paracetamol (I'm not in pain!) and build up my exercise slowly (I am not building up to anything, I am sliding backwards). She 'diagnosed' myalgia or Chronic Fatigue - which by my estimation means" go away and stop making a fuss, we're not going to do anything for you."
I asked for a homocysteine test, they won't do it. I asked for a referral to someone who would, she claims no-one will. She offered me anti-depressants which seems like the go-to thing - I have been offered them every time I go in. Yes, I do have a history of depression, yes, I am kind of depressed right now, but that is a symptom, not the cause of the problem.
I did go to a private doctor last year - with the same symptoms - he also 'diagnosed' chronic fatigue and prescribed hundreds of pounds worth of pills and potions.
I just don't know what to do. I am not prepared to just sit back and watch my health decline and never have any energy or feel healthy ever again. I am at the end of my rope and have lost faith in medical 'professionals' who know nothing about diet and don't seem to care at all.
Please, please help me.